Inflammatory Bowel Disease Self-Management: Exploring Adolescent Use of an Online Instagram Support Community.
Inflammatory Bowel Disease Self-Management: Exploring Adolescent Use of an Online Instagram Support Community.
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炎症性肠病自我管理：探索青少年使用在线Instagram支持社区。
DOI：
10.1097/sga.0000000000000657
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发表时间：
2022-07-01
影响因子：
0.8
通讯作者：
Miller, Wendy R.
中科院分区：
文献类型：
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作者：
Malloy, Caeli;Rawl, Susan M.;Miller, Wendy R.
这项定性研究的目的是探讨青少年炎症性肠病（IBD）的疾病自我管理经验的挑战，如在线Instagram社会支持社区所表达的。2019年1月至12月期间的公开Instagram帖子是从在线IBD支持社区手动收集的。为了关注青少年的自我管理需求，只收集了来自Instagram用户的帖子，这些用户：1）表示他们患有IBD; 2）年龄在13-24岁或在中学，高中或大学。使用主题分析，作者独立编码和识别自我管理的新兴主题。在评估合格性的2，700个Instagram帖子中，有83个帖子符合纳入标准。关于IBD自我管理的六大主题出现了：对正常的渴望，饮食变化，教育和职业，医疗保健系统，与他人的关系以及症状和并发症。作为在线IBD社区中Instagram帖子的第一个主题分析，结果为IBD青少年的关注提供了一个重要的视角。自我管理的挑战是广泛和复杂的，强调了IBD自我管理在青少年人群中的重要性。护士应采取整体的方法来评估自我管理的挑战，并根据IBD青少年的具体需求量身定制护理。
The purpose of this qualitative study was to explore the challenges adolescents with inflammatory bowel disease (IBD) experience with disease self-management as expressed in an online Instagram social support community. Public Instagram posts between January and December 2019 were manually collected from an online IBD support community. To focus on adolescent self-management needs, only posts from Instagram users who: 1) indicated they had IBD; 2) were 13–24 years old or were in middle school, high school, or college were collected. Using thematic analysis, authors independently coded and identified emerging themes about self-management. Out of 2,700 Instagram posts assessed for eligibility, 83 posts met inclusion criteria. Six major themes about IBD self-management emerged: Desire for Normalcy, Dietary Changes, Education and Career, Healthcare System, Relationships with Others, and Symptoms and Complications. As the first thematic analysis of Instagram posts in an online IBD community, results provide a crucial perspective of the concerns of adolescents with IBD. Self-management challenges were wide-ranging and complex, underscoring the importance of IBD self-management in the adolescent population. Nurses should take a holistic approach to assess self-management challenges and tailor care to the specific needs of adolescents living with IBD.