Perspectives of cancer prevention and control resources from stakeholders in rural southern Illinois.
Perspectives of cancer prevention and control resources from stakeholders in rural southern Illinois.
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DOI：
10.1111/jrh.12606
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发表时间：
2022-03
期刊：
影响因子：
--
通讯作者：
Chambers L
中科院分区：
文献类型：
--
作者：
Kruse-Diehr AJ;Lewis-Thames MW;Wiedenman E;James A;Chambers L
农村居民的癌症负担高于城市居民，这可能与多种社会生态因素有关。这项研究试图调查伊利诺伊州南部农村地区不同的农村利益相关者对获得癌症预防和控制资源的看法。利益相关者从伊利诺伊州南部的县招募，包括居民(癌症幸存者或照顾者)、肩负健康相关使命的社区组织的领导人和医疗保健提供者。个别访谈和焦点小组评估了推荐的癌症预防、控制和治疗资源；区域资源的帮助作用；以及所需资源。研究小组使用迭代方法进行主题分析，其中代码是归纳得出的，并反复改进以揭示总体主题。44个利益攸关方报告了在获得医疗保健方面的挑战(例如，旅行距离、经济负担和护理质量差)和获得支持性护理服务的机会有限(缺乏护理者支持和“参差不齐”的地区资源)。为了减少这些障碍，当地居民使用了个人(自力更生和适应性措施)和组织(患者导航和金融服务)相结合的方法。最后，利益攸关方报告了多种形式的癌症控制和预防沟通，包括与医疗保健提供者的正式讨论和各种类型的非正式社会支持(例如，朋友和家人)。利益相关者经历了癌症预防和控制的障碍，通常通过依赖个人适应、非临床组织支持和非正式支持系统来缓解。虽然伊利诺伊州南部的资源仍然很少，但研究人员和从业者必须努力利用现有的社区组织和社会网络来改善该地区的癌症结果。
Rural residents have a higher cancer burden than urban residents, which is likely related to multiple socioecological factors. This study sought to investigate the perspectives of a diverse set of rural stakeholders regarding access to cancer prevention and control resources in rural southern Illinois. Stakeholders were recruited from counties in southern Illinois and included residents (cancer survivors or caregivers), leaders of community-based organizations with health-related missions, and health care providers. Individual interviews and focus groups assessed recommended cancer prevention, control, and treatment resources; helpfulness of regional resources; and needed resources. The research team used an iterative approach to thematic analysis wherein codes were derived inductively and refined repeatedly to reveal overarching themes. Forty-four stakeholders reported challenges to health care access (eg, travel distance, financial burdens, and poor quality of care) and limited access to supportive care services (lack of caregiver support and “spotty” area resources). To mitigate these barriers, local residents used a combination of individual (self-reliance and adaptive measures) and organizational (patient navigation and financial services) approaches. Finally, stakeholders reported multiple forms of cancer control and prevention communication, including formal discussions with health care providers and various types of informal social support (eg, friends and family). Stakeholders experienced barriers to cancer prevention and control often mitigated by a reliance on personal adaptations, nonclinical organizational supports, and informal support systems. While resources remain minimal in southern Illinois, researchers and practitioners must make efforts to leverage existing community organizations and social networks to improve cancer outcomes in this region.
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影响因子：
3.8
作者：
Byers, Tim
通讯作者：
Byers, Tim
影响因子：
2.7
作者：
Friedman, Daniela B.;Foster, Caroline;Kim, Sei-Hill
通讯作者：
Kim, Sei-Hill
影响因子：
5.1
作者：
Lewis-Thames, Marquita W.;Langston, Marvin E.;Han, Yunan
通讯作者：
Han, Yunan
DOI：
10.1158/1055-9965.epi-17-0092
发表时间：
2017-07
期刊：
Cancer epidemiology, biomarkers & prevention : a publication of the American Association for Cancer Research, cosponsored by the American Society of Preventive Oncology
影响因子：
--
作者：
Blake KD;Moss JL;Gaysynsky A;Srinivasan S;Croyle RT
通讯作者：
Croyle RT
影响因子：
4.5
作者：
Gessert C;Waring S;Bailey-Davis L;Conway P;Roberts M;VanWormer J
通讯作者：
VanWormer J