Family caregivers navigating the health care system: Evolving roles during the COVID-19 pandemic.
Family caregivers navigating the health care system: Evolving roles during the COVID-19 pandemic.
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DOI：
10.1037/fsh0000688
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发表时间：
2022-06
影响因子：
1.3
通讯作者：
Rosland, Ann-Marie
中科院分区：
文献类型：
--
作者：
Semere, Wagahta;Makaroun, Lena K.;Beach, Scott;Schillinger, Dean;Rosland, Ann-Marie
新冠肺炎大流行改变了人们获得卫生保健的途径；目前尚不清楚慢性病和残疾患者及其家庭照顾者如何适应这些变化。在这项研究中，我们研究了在新冠肺炎大流行期间，家庭照顾者角色的变化，帮助患有慢性病和残疾的照顾者满足医疗需求。从2020年4月15日至5月27日，我们向一个基于人口的区域研究登记机构的家庭照顾者成员分发了在线和电话调查。照顾者报告说，与冠状病毒大流行之前相比，他们现在在10项医疗保健活动(例如，填写处方、看医生预约)中帮助的是“更多”、“更少”还是“相同”。使用多变量Logistic回归模型，我们检验了与帮助更多人进行一项或多项医疗保健活动相关的照顾者和照顾者背景特征。在561名护理者受访者中，平均年龄为59岁，76%为女性，56%与护理者同居。许多照顾者(59%)报告说，自大流行以来，在一项或多项卫生保健活动中增加了帮助。照顾者报告说，获得医疗用品(31%)和照顾接受者的电话(21%)和视频(16%)的医疗预约得到了更大的帮助。女性(OR 1.55；95%CI 1.02-2.36)和帮助短期身体状况的照顾者更有可能在一项或更多医疗保健活动中提供更多帮助(OR 2.81；95%CI 1.20-6.59)。家庭照顾者报告说，自大流行以来，他们有责任帮助患有慢性病和残疾的照顾者继续参与医疗保健。提供者和卫生系统应考虑有针对性的战略，以支持护理人员帮助弱势患者获得必要的护理。
The COVID-19 pandemic has altered access to health care; it remains unclear how patients with chronic illness and disability and their family caregivers are adapting to these changes. In this study, we examined changes in family caregiver roles helping care recipients with chronic illness and disability navigate health care needs during the COVID-19 pandemic. From April 15 to May 27, 2020, we distributed online and telephone surveys to family caregiver members of a population-based regional research registry. Caregivers reported whether they were helping “more,” “less,” or the “same” with ten health care activities (e.g., filling prescriptions, attending medical appointments) now, compared to before the coronavirus pandemic. Using multivariable logistic regression models, we examined caregiver and caregiving context characteristics associated with helping more with 1 or more health care activities. Of 561 caregiver respondents, mean age was 59 years, 76% were women, and 56% co-resided with care recipients. Many caregivers (59%) reported increased help with 1 or more health care activities since the pandemic. Caregivers reported greater help getting medical supplies (31%) and attending care recipients’ phone (21%) and video (16%) medical appointments. Women (OR 1.55; 95% CI 1.02–2.36) and caregivers assisting with short-term physical conditions were more likely to help more with 1 or more health care activities (OR 2.81; 95% CI 1.20–6.59). Family caregivers reported their responsibilities helping care recipients with chronic conditions and disabilities stay engaged with health care increased since the pandemic. Providers and health systems should consider targeted strategies to support caregivers helping vulnerable patients access necessary care.
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