American Brain Tumor Association Adolescent and Young Adult Primary Brain and Central Nervous System Tumors Diagnosed in the United States in 2008-2012
American Brain Tumor Association Adolescent and Young Adult Primary Brain and Central Nervous System Tumors Diagnosed in the United States in 2008-2012
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DOI：
10.1093/neuonc/nov297
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发表时间：
2016-01-01
期刊：
影响因子：
15.9
通讯作者：
Barnholtz-Sloan, Jill S.
中科院分区：
文献类型：
--
作者：
Ostrom, Quinn T.;Gittleman, Haley;Barnholtz-Sloan, Jill S.
CBTRUS是美国一个以人群为基础的特定地点登记处，与公共癌症监测组织CDC的国家中央登记计划（NPCR）合作，并根据特别协议直接接收数据。该协议允许通过NPCR癌症监测系统（NPCR-CSS）提交规范机制传输数据。CBTRUS研究人员将NPCR数据与NCI SEER计划9的数据相结合，该计划是在20世纪70年代初为国家癌症监测而建立的。来自NPCR和SEER的所有数据均来自肿瘤登记机构，这些登记机构遵守北美中央癌症登记协会（NAACCR）指导的恶性和非恶性脑和CNS肿瘤统一数据标准（UDS）（http：//www.nccn.org/ncn/ncn/ncn/ncn/）。纳克拉赫org），并将这些数据报告给他们所在州的中央癌症登记处。沿着UDS，还有质量控制检查和对每个中央癌症登记处进行评级的系统，以进一步确保这些数据尽可能准确和完整地报告。因此，作为监测合作伙伴，CBTRUS可以报告高质量的脑和中枢神经系统肿瘤数据，这些数据具有组织学特异性，对它所服务的社区有用。其数据库代表了美国原发性脑和CNS肿瘤发病率的最大人群数据集合。美国所有中央癌症登记处的所有癌症的汇总信息，包括原发性脑和CNS，可在美国癌症统计中获得。七、十
BackgroundCBTRUS is a population-based site-specific registry in the US that works in partnership with a public cancer surveillance organization, the CDC's National Program of Central Registries (NPCR), and from which data are directly received under a special agreement. This agreement permits transfer of data through the NPCR Cancer Surveillance System (NPCR-CSS) Submission Specifications mechanism. CBTRUS researchers combine the NPCR data with data from the NCI SEER program 9 which was established for national cancer surveillance in the early 1970s. All data from NPCR and SEER originate from tumor registrars who adhere to the Uniform Data Standards (UDS) for malignant and non-malignant brain and CNS tumors as directed by the North American Association of Central Cancer Registries (NAACCR)(http://www. naaccr. org) and report these data to the central cancer registry in their state. Along with the UDS, there are quality control checks and a system for rating each central cancer registry to further insure that these data are reported as accurately and completely as possible. As a surveillance partner, CBTRUS can, therefore, report high quality data on brain and CNS tumors with histological specificity useful to the communities it serves. Its database represents the largest aggregation of population-based data on the incidence of primary brain and CNS tumors in the US. Aggregate information on all cancers from all central cancer registries in the United States, including primary brain and CNS, is available in United States Cancer Statistics. 7, 10