Parents' Perspective of Their Journey Caring for a Child with Chronic Neuropathic Pain
Parents' Perspective of Their Journey Caring for a Child with Chronic Neuropathic Pain
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DOI：
10.1016/j.pmn.2012.09.002
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发表时间：
2014-03-01
影响因子：
1.7
通讯作者：
Mott, Sandra
中科院分区：
文献类型：
--
作者：
Gaughan, Veronica;Logan, Deirdre;Mott, Sandra
当孩子有慢性疼痛时，会影响父母。他们的反应以及如何将其纳入他们的生活和家庭功能是推动这项研究的兴趣现象。可用的文献很少，特别是当疼痛的病因是神经病理性的时候。这项研究的目的是描述父母对孩子从最初疼痛发生到治疗方案迷宫般的痛苦旅程的感知，以更好地理解父母对疼痛的信念，并了解父母的态度和行为与儿童对慢性疼痛治疗的反应有何关系。定性描述性设计被用来更好地理解专家的现象，因为他们经历过它。孩子参加疼痛康复计划的父母参加了开放式访谈。这些儿童/青少年年龄在8-18岁之间，被诊断出患有复杂的区域疼痛综合征或相关的慢性疼痛状况。在数据沉浸期间，调查人员发现了普遍存在的痛苦和丧失权力的潜在主题。此外，多个意义元素被分为三个类别和支持性亚类，标记如下：父母痛苦，子类分裂，父母教养，寻找，和残疾父母；缺乏控制，子类，家庭/社区，恐惧，和赋权。父母的声音在他们描述为孩子寻找痛苦缓解的疲惫和艰难的旅程中被听到。他们的评论为他们如何定义孩子的痛苦和他们相关的父母角色提供了洞察力。(C)美国疼痛管理护理学会2014年
When a child has chronic pain, it affects the parents. Their response and how it is factored into their lives and family function was the phenomenon of interest that drove this study. The available literature was sparse, especially when the pain etiology was neuropathic. The purpose of this study was to describe the parents' perception of the pain journey from the initial occurrence of their child's pain through the labyrinth of treatment options to successful outcome, to gain a better understanding of parental beliefs about pain, and to learn how parental attitudes and behaviors relate to children's response to treatment for chronic pain. Qualitative descriptive design was used to better understand the phenomenon from those who were the experts because they had experienced it. Parents whose child was enrolled in a pain rehabilitation program participated in open-ended interviews. The children/adolescents were 8-18 years old and diagnosed with complex regional pain syndrome or a related chronic pain condition. During data immersion, the investigators uncovered the pervasive underlying themes of suffering and disempowerment. In addition, the multiple meaning elements were grouped into three categories and supportive subcategories labeled as follows: parent distress, with subcategories schism in parenting, searching, and disabled parenting; and lack of control, with the subcategories family/community, fear, and empowerment. The voices of parents were heard in their description of the exhausting and difficult journey in search of pain relief for their child. Their comments provided insight into how they defined the child's pain and their related parental role. (C) 2014 by the American Society for Pain Management Nursing