Physicians' attitudes about quality-of-life issues in hematopoietic stem cell transplantation
Physicians' attitudes about quality-of-life issues in hematopoietic stem cell transplantation
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DOI：
10.1182/blood-2003-07-2430
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发表时间：
2004-10-01
期刊：
影响因子：
20.3
通讯作者：
Syrjala, KL
中科院分区：
文献类型：
--
作者：
Lee, SJ;Joffe, S;Syrjala, KL
对造血干细胞移植后生活质量(QOL)的研究表明，等待幸存者的QOL结果各不相同。然而，移植医生如何解释并将生活质量信息应用到临床实践中却知之甚少。我们对移植医生进行了一项横断面调查，以解决这些问题，并从29个国家的医生那里收到了180份回复(24%)。72%的患者报告说，他们的患者愿意接受糟糕的生活质量，因为治愈的机会很小。只有28%的人表示，患者在决定移植时“经常”或“几乎所有”都会考虑到生活质量。这与医生在与患者讨论时对生活质量的关注形成了鲜明对比。尽管53%的医生报告使用QOL结果来修改实践，但55%的医生会更有可能使用这些数据，如果它们更容易理解的话。为了确保结果的概括性，随机选择了一个验证样本，这85名医生(应答率为76%)证实了最初调查的结果。鉴于移植后生活质量的广泛数据，应致力于探索患者和医生如何在临床护理中使用这些数据，并设计方法以确保生活质量结果是可解释的，并与患者和医生相关。(C)2004年，由美国血液病学会提供。
Studies investigating quality of life (QOL) after hematopoietic stem cell transplantation demonstrate the spectrum of QOL outcomes awaiting survivors. Nevertheless, how transplantation physicians interpret and apply QOL information to clinical practice is poorly understood. We conducted a cross-sectional survey of transplantation physicians to address these issues and received 180 (24%) responses from physicians in 29 countries. Seventy-two percent reported that their patients are willing to accept poor QOL for a small chance of cure. Only 28% said that QOL considerations "often" or "almost all the time" enter into patients decisions about transplantation. This contrasted with physicians' reported attention to QOL in their discussions with patients. Although 53% of physicians reported using QOL results to modify practice, 55% would be more likely to use these data if they were more understandable. To ensure generalizability of the results, a validation sample was randomly selected, and these 85 physicians (response rate, 76%) confirmed the findings of the original survey. Given the extensive data regarding posttransplantation QOL, resources should be devoted to exploring how patients and physicians use these data in clinical care and in devising methods to ensure that QOL results are interpretable and relevant to patients and physicians. (C) 2004 by The American Society of Hematology.