In Our Community, Dementia Speaks: Pilot of a person-centered training targeting African-American caregivers of persons-living with dementia (innovative practice)

In Our Community, Dementia Speaks: Pilot of a person-centered training targeting African-American caregivers of persons-living with dementia (innovative practice)
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DOI:
10.1177/1471301219885784
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发表时间:
2019-11-04
影响因子:
2.4
通讯作者:
Smith, Macie P.
Smith, Macie P.
中科院分区:
法学3区
文献类型:
--
作者:
Guest, M. Aaron;Smith, Macie P.

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非裔美国人比其他任何群体都面临更高的阿尔茨海默病和其他相关痴呆症的发病率。随着阿尔茨海默病和其他相关痴呆症的病例预计到2050年将翻一番,非洲裔美国人社区将受到严重影响。认识到有必要为照顾者和阿尔茨海默病及其他相关痴呆症患者制定适合文化的方案,“痴呆症之声”是通过社区参与式的参与模式制定的。虽然试点结果显示,在前/后测试的知识,一个更微妙的审查数据表明,成功地改变态度和行为之间的照顾者对疾病的统计显着增加。这些成果为今后的干预措施提供了指导,并为改进现有的方案拟订工作提供了指导。
African-Americans face higher rates of Alzheimer's disease and other related dementias than any other group. With cases of Alzheimer's disease and other related dementias expected to double by 2050 the African-American community stands to be disproportionally affected. Recognizing the need for culturally tailored programming for caregivers and those living with Alzheimer's disease and other related dementias In Our Community, Dementia Speaks was developed through a community-participatory model of engagement. While pilot results showed a non-statistically significant increase in pre/posttest knowledge a more nuanced review of the data indicates success in changing attitudes and behaviors regarding the disease among caregivers. Results provide a guide for informing future interventions and improving existing programming.