Unmet psychosocial needs of Pennsylvanians with cancer: 1986-2005
Unmet psychosocial needs of Pennsylvanians with cancer: 1986-2005
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DOI：
10.1002/cncr.22820
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发表时间：
2007-08-01
期刊：
影响因子：
6.2
通讯作者：
Palmer, Steven C.
中科院分区：
文献类型：
--
作者：
Barg, Frances K.;Cronholm, Peter F.;Palmer, Steven C.
背景。当前研究的目的是确定癌症幸存者未满足的社会心理需求，了解不同亚组的需求分布，并将 2005 年未满足的需求与 Houts 等人确定的需求进行比较。 1986年。方法。采用序贯混合方法设计，对 32 名癌症幸存者或家庭成员进行定性访谈，以确定人们从癌症诊断到幸存者的心理社会需求。这些数据用于修改需求评估，该评估已邮寄给从宾夕法尼亚州癌症登记处获得的幸存者分层随机样本。结果。共有 614 名幸存者返回了可用的问卷。近三分之二的受访者表示至少经历过未满足的心理社会需求，特别是情感、身体和治疗相关的需求。在 20 年的调查间隔期间，保险、就业、信息和家庭护理方面未满足的需求可能会增加。与未满足需求增加相关的人口统计特征包括诊断时疾病处于晚期、年龄较小、合并症较多和收入较低。结论。尽管20年来努力解决社会心理问题，但未满足的社会心理需求仍然很高。这可能是由于需求和服务之间不匹配造成的。未满足的需求可能与获取问题、缺乏资源意识、不断变化的医疗环境中出现的“新”需求以及患者对服务类型的偏好有关。癌症治疗人员应特别警惕有额外疾病负担的年轻人的心理社会问题。
Background. The purpose of the current study was to identify unmet psychosocial needs of cancer survivors, understand the distribution of needs across subgroups, and compare unmet needs in 2005 with those identified by Houts et al. in 1986.Methods. Using a sequential mixed methods design, qualitative interviews were conducted with 32 cancer survivors or family members to identify the psychosocial needs of people from the time of cancer diagnosis through survivorship. These data were used to modify a needs assessment that was mailed to a stratified random sample of survivors obtained from the Pennsylvania Cancer Registry.Results. A total of 614 survivors returned usable questionnaires. Nearly two-thirds of respondents reported experiencing at least I unmet psychosocial need, particularly emotional, physical, and treatment-related needs. It is likely that unmet needs in insurance, employment, information, and homecare increased during the 20-year interval between surveys. Demographics associated with increased unmet need included later stage of disease at the time of diagnosis, younger age, more comorbidities, and lower income.Conclusions. Unmet psychosocial need remains high despite 20 years of effort to address psychosocial issues. This may be due to a mismatch between needs and services. Unmet need may be related to access issues, a lack of awareness of resources, "new" needs that have arisen in a changing healthcare climate, and patient preferences for types of service. Cancer treatment staff should be especially alert for psychosocial problems in younger individuals with an additional illness burden.