Population-based survivorship research using cancer registries: a study of non-Hodgkin's lymphoma survivors.
Population-based survivorship research using cancer registries: a study of non-Hodgkin's lymphoma survivors.
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DOI：
10.1007/s11764-007-0004-3
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发表时间：
2007-03-01
期刊：
影响因子：
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通讯作者：
Stevens, Jennifer
中科院分区：
文献类型：
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作者：
Arora, Neeraj K;Hamilton, Ann S;Stevens, Jennifer
前言：最近的几份报告建议使用基于人群的癌症登记来评估癌症幸存者的长期健康结果。根据对非霍奇金淋巴瘤(NHL)幸存者的研究经验，我们讨论了利用癌症登记进行基于人群的生存研究的概念和方法上的挑战和机会。材料和方法：从洛杉矶监测流行病学和最终结果(SEER)登记中抽取1998年6月至2001年8月(研究前2-5年)诊断的侵袭性NHL幸存者。一个概念框架被开发来系统地评估社会人口学、临床、社会、心理和行为因素与幸存者健康相关生活质量的关联。结果：在登记的744名符合条件的幸存者中，181人(24.3%)失访；408人(54.8%)回答问卷；155人(20.8%)拒绝。与其他两组相比，失访的患者中年轻男性和西班牙裔幸存者的比例明显更高(P
INTRODUCTION: Several recent reports have recommended use of population-based cancer registries for evaluating the long-term health outcomes of cancer survivors. Drawing upon experiences from a study of survivors of non-Hodgkin's Lymphoma (NHL), we discuss conceptual and methodological challenges to and opportunities for conducting population-based survivorship research using cancer registries.MATERIALS AND METHODS: Survivors of aggressive NHL diagnosed between June 1998 and August 2001, 2-5 years prior to the study, were sampled from the Los Angeles Surveillance Epidemiology and End Results (SEER) registry. A conceptual framework was developed to systematically evaluate the association of sociodemographic, clinical, social, psychological, and behavioral factors with survivors' health-related quality of life. Data were collected primarily by a mailed questionnaire; medical records were also abstracted.RESULTS: Of 744 eligible survivors identified from the registry, 181 (24.3%) were lost to follow-up; 408 responded to the questionnaire (54.8%); 155 (20.8%) refused. Those lost to follow-up included a significantly higher proportion of younger, male, and Hispanic survivors compared to the other two groups (P