Maternal well-being and child behavior in families with fragile X syndrome

Maternal well-being and child behavior in families with fragile X syndrome
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DOI:
10.1016/j.ridd.2014.06.012
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发表时间:
2014-10-01
影响因子:
3.1
通讯作者:
Abbeduto, Leonard
Abbeduto, Leonard
中科院分区:
医学2区
文献类型:
--
作者:
Hauser, Claire T.;Kover, Sara T.;Abbeduto, Leonard

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本研究旨在探讨脆性X综合征(FXS)患儿的母亲心理健康状况、母亲压力、家庭环境与行为功能之间的双向关系。患有FXS的儿童通常表现出与焦虑,注意力和攻击性相关的挑战性行为,而患有FXS的儿童的母亲由于其作为FXS前突变的遗传携带者以及养育有特殊需要的儿童的环境压力因素而被确定为易受心理健康挑战。这项研究的纵向设计建立在以前的工作,建立了一个并发的关系,这些因素在家庭中的儿童与其他智力障碍。研究结果表明,母亲的心理健康状况与儿童挑战行为水平的变化没有显着相关,随着时间的推移,儿童挑战行为的提高与母亲抑郁症的改善有关,随着时间的推移,儿童挑战行为的提高与母亲对儿童的亲密感增加有关。关于母亲抑郁和亲密关系的结果的意外性质提供了关于特殊需要儿童的母亲如何表现出适应性和弹性的新的和更复杂的假设。这一发现对母亲和家庭心理健康治疗以及未来的研究具有重要意义。(C)2014爱思唯尔有限公司版权所有。
The purpose of this study was to examine the bidirectional relationships relationship between maternal mental health status, maternal stress, family environment and behavioral functioning of children with fragile X syndrome (FXS), the leading cause of inherited intellectual disability. Children with FXS commonly demonstrate challenging behavior related to anxiety, attention, and aggression, whereas mothers of children with FXS have been identified as susceptible to mental health challenges due to their status as genetic carriers of the FXS premutation, as well as the environmental stressors of raising children with special needs. The longitudinal design of this study builds upon prior work that established a concurrent relationship among these factors in families of children with other intellectual disorders. Findings indicated that maternal mental health status was not significantly related to changes in levels of child challenging behavior, heightened child challenging behavior was related to improvements in maternal depression over time, and heightened levels of child challenging behavior was related to increased feelings of maternal closeness toward the child over time. The unexpected nature of the results regarding maternal depression and closeness provides new and more complex hypotheses about how mothers of special needs children demonstrate adaptation and resilience. The findings have implications for maternal and familial mental health treatment as well as future research. (C) 2014 Elsevier Ltd. All rights reserved.