Are Parents Really Obligated to Learn as Much as Possible about Their Children's Genomes?
Are Parents Really Obligated to Learn as Much as Possible about Their Children's Genomes?
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父母真的有义务尽可能多地了解孩子的基因组吗？
DOI：
10.1002/hast.877
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发表时间：
2018
期刊：
影响因子：
--
通讯作者：
Juengst,Eric
中科院分区：
文献类型：
--
作者：
Johnston,Josephine;Juengst,Eric
初为父母的人很快就会明白，养育子女总是要选择你的战斗。理想情况下，父母有自由做出这些道德选择，而不受不合理或过早强加的偏见的影响。解决基因组信息的预测不确定性是生物医学界的专业责任，就像澄清全球变暖的影响或评估多药耐药性上升的风险是类似专家的责任一样。在测序能够为父母提供明确而有意义的信息，让他们可以用来保护自己的孩子，同时又不会让父母承担不确定的发现的负担（如果有什么可以做的话，那就太少了）之前，让他们承担寻找这些信息的义务是没有意义的。这样做不仅增加了父母的精神和情感负担，而且扭曲了父母责任的范围，损害了父母作为新生命养育者的直接作用。
As new parents quickly learn, parenting always involves choosing your battles. Ideally, parents have the freedom to make those moral choices without the prejudice of an unreasonable or premature inflicted ought. Resolving the predictive uncertainties of genomic information is the professional responsibility of the biomedical community, just as clarifying the impact of global warming or assessing the risks of rising multidrug resistance is the responsibility of similar specialists. Until sequencing can give parents clear and meaningful information that they can use to protect their children without also burdening parents with uncertain findings about which little if anything can be done, it makes no sense to impute an obligation for them to seek it out. To do so not only increases the mental and emotional burden on parents but also distorts the scope of parental responsibility in ways that undermine parents’ capacity to play their immediate role as the nurturers of a new life.
影响因子：
3
作者：
Kalynchuk, Eve J.;Althouse, Andrew;Rajkovic, Aleksandar
通讯作者：
Rajkovic, Aleksandar