Health data poverty: an assailable barrier to equitable digital health care
Health data poverty: an assailable barrier to equitable digital health care
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DOI：
10.1016/s2589-7500(20)30317-4
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发表时间：
2021-03-23
影响因子：
30.8
通讯作者：
Denniston, Alastair K.
中科院分区：
文献类型：
--
作者：
Ibrahim, Hussein;Liu, Xiaoxuan;Denniston, Alastair K.
数据驱动的数字医疗技术有能力改变医疗保健。如果这些工具能够可持续地大规模提供，它们可能有潜力为世界各地的每个人提供公平获得专家级护理的机会，缩小全球健康和福祉差距。相反，这些变革性技术很可能反而会加剧现有的医疗不平等。在本观点中，我们描述了健康数据贫困的问题：由于缺乏具有充分代表性的数据，个人、团体或人群无法从发现或创新中受益。我们认为，健康数据贫困是对全球健康的威胁，可能会阻碍数据驱动的数字健康技术的好处得到更广泛的实现，甚至可能导致它们造成伤害。我们认为，现在采取行动的时机是避免造成数字健康鸿沟，加剧现有的医疗保健不平等，并确保没有人在数字世界中落后，www.example.com正在以天文数字的速度积累健康数据，估计2020年的健康数据总量为2314艾字节。其中1艾字节等于10亿千兆字节。11其次，如何使用卫生数据？健康数据用于使患者和公众受益，健康数据的使用可分为主要或次要。主要（直接）用途是指卫生数据用于向所收集的个人提供卫生保健。s关心。第二（间接）用途是将卫生数据用于改善卫生保健
Data-driven digital health technologies have the power to transform health care. If these tools could be sustainably delivered at scale, they might have the potential to provide everyone, everywhere, with equitable access to expert-level care, narrowing the global health and wellbeing gap. Conversely, it is highly possible that these transformative technologies could exacerbate existing health-care inequalities instead. In this Viewpoint, we describe the problem of health data poverty: the inability for individuals, groups, or populations to benefit from a discovery or innovation due to a scarcity of data that are adequately representative. We assert that health data poverty is a threat to global health that could prevent the benefits of data-driven digital health technologies from being more widely realised and might even lead to them causing harm. We argue that the time to act is now to avoid creating a digital health divide that exacerbates existing health-care inequalities and to ensure that no one is left behind in the digital era.today are amassing health data at astronomical rates, with estimates putting the total volume of health data in 2020 at 2314 exabytes?where one exabyte is equal to 1 billion gigabytes.11 Second, how are health data used? Health data are used to benefit patients and the public, and the use of health data can be classified as either primary or secondary. The primary (direct) use is where health data are used to deliver health care to the individual from whom they were collected.12 Here, health data inform health-care professionals when making diagnoses and decisions relating to an individual?s care. The secondary (indirect) use is where health data are used to improve health care