Reliability and validity of the simplified Chinese version of the Early Onset Scoliosis-24-Item Questionnaire (EOSQ-24)
Reliability and validity of the simplified Chinese version of the Early Onset Scoliosis-24-Item Questionnaire (EOSQ-24)
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早发性脊柱侧凸24项问卷（EOSQ-24）简体中文版的信度和效度
DOI：
10.21037/tp-19-177
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发表时间：
2020-07
期刊：
影响因子：
--
通讯作者：
Nanfang Xu
中科院分区：
文献类型：
--
作者：
Zhehuang Li;Yu Yue;Hiroko Matsumoto;Michael G. Vitale;David P. Roye Jr;Xiangjian Song;Nanfang Xu
使用标准的评估工具来量化早发性脊柱侧凸（EOS）对这些儿童及其照顾者健康相关生活质量的影响是很重要的。在本研究中，我们旨在翻译和验证简体中文版本的早发型脊柱侧凸问卷-24 (EOSQ-24)，以评估中国大陆早发型脊柱侧凸患者的健康相关生活质量（HRQoL）和照顾者负担。方法EOSQ-24按照标准方案进行前后翻译，进行文化适应，并于2015年2月至12月招募符合特定纳入标准的患者。通过中位数和标准差评估反应分布。计算了地板和天花板效应。采用Cronbach’s α建立信度，采用Mann-Whitney U检验和Kruskal-Wallis检验确定判别效度。结果共63名儿童及其家长参与本研究。大多数回答都偏向于正常的身体和心理健康。没有观察到下限效应，但在疼痛和肺功能的问题中发现了上限效应。所有问题和所有领域的Cronbach 's α分别为0.950和0.927。EOSQ-24评分与曲线严重程度和活动状态呈负相关。基于这些初步结果，EOSQ-24可用于这些方面的患者区分。结论简体中文版EOSQ-24是评估中国大陆地区EOS患儿照料者（家长）HRQoL的可靠有效工具。它有可能被纳入该患者群体的常规临床护理，并作为研究目的的标准评估工具。
Background It is important to use standard assessment tools to quantify the impact of early-onset scoliosis (EOS) on the health-related quality of life of these children and their caregivers. In this study we aimed to translate and validate the simplified Chinese version of the Early Onset Scoliosis Questionnaire-24 (EOSQ-24) in order to assess the health-related quality of life (HRQoL) and caregiver burden among patients with EOS from mainland China. Methods EOSQ-24 was forward-and-backward translated according to standard protocols, culturally adapted, and administered to patients fulfilling specific inclusion criteria and recruited between February and December 2015. Response distribution was assessed by their median and standard deviation. Floor and ceiling effects were calculated. Reliability was established using Cronbach’s α and discriminative validity was determined using the Mann-Whitney U test and the Kruskal-Wallis test. Results A total of 63 children and their parents participated in this study. Most responses were left skewed towards normal physical and psychosocial well-being. No floor effect was observed but ceiling effect was found in questions regarding pain and pulmonary function. Cronbach’s α for all questions and all domains was 0.950, and 0.927, respectively. EOSQ-24 scores were negatively correlated with curve severity and ambulatory status. Based on these preliminary results, EOSQ-24 could be used to distinguish patients in these regards. Conclusions The simplified Chinese version of EOSQ-24 is a reliable and valid tool for HRQoL assessment among caregivers (parents) of children with EOS in mainland China. It could potentially be incorporated into routine clinical care in this patient population and as a standard assessment tool for research purposes.
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影响因子：
1.7
作者：
Corona, Jacqueline;Matsumoto, Hiroko;Vitale, Michael G.
通讯作者：
Vitale, Michael G.
影响因子：
1.7
作者：
Vitale, MG;Roye, EA;Roye, DP
通讯作者：
Roye, DP
影响因子：
1.7
作者：
Vitale, MG;Levy, DE;Roye, DP
通讯作者：
Roye, DP
DOI：
10.5435/jaaosglobal-d-17-00066
发表时间：
2018-07
期刊：
Journal of the American Academy of Orthopaedic Surgeons. Global research & reviews
影响因子：
--
作者：
Molland RS;Diep LM;Brox JI;Stuge B;Holm I;Kibsgard TJ
通讯作者：
Kibsgard TJ
影响因子：
3
作者：
PEHRSSON, K;LARSSON, S;NACHEMSON, A
通讯作者：
NACHEMSON, A