"Doing Good" in U.S. Cancer Genomics? Valuation practices across the boundaries of research and care in rural community oncology.
"Doing Good" in U.S. Cancer Genomics? Valuation practices across the boundaries of research and care in rural community oncology.
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DOI：
10.1080/14636778.2022.2091532
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发表时间：
2022
影响因子：
1.8
通讯作者：
Han, Paul K. J.
中科院分区：
文献类型：
--
作者：
Darling, Katherine Weatherford;Kohut, Michael;Leeds, Susan;Anderson, Eric C.;Han, Paul K. J.
基因组肿瘤测试（GTT）是肿瘤学中“实验护理”的新兴场所[Cambrosio，Alberto，Peter Keating，Etienne Vignola-Gagné，Sylvain Besle，and Pascale Bourret. 2018年a。“扩展实验：肿瘤学研究与护理之间的界限逐渐消失。”New Genetics and Society 37（3）：207-226. doi：10.1080/14636778.2018.1487281]。实施GTT的努力很少达到社区肿瘤学实践或生活在美国农村社区的患者。借鉴跨学科研究的全州范围内的癌症基因组学倡议在美国农村的缅因州，本文探讨了社区肿瘤学家和癌症利益相关者的帐户内的“做好”基因组科学和护理的估值实践。我们通过突出管理经济和非经济价值的战略的情感维度，为生物经济的STS文献做出贡献。临床医生和利益相关者在“为缅因州”建立当地基因组平台时，就去经济化和资本化的行善模式进行了谈判。这些通过癌症基因组学做好事和感觉良好的定位模式，塑造了他们如何跨越研究和护理的界限，驾驭美国生物医学市场的伦理模糊性。
Genomic Tumour Testing (GTT) is an emerging site of “experimental care” in oncology [Cambrosio, Alberto, Peter Keating, Etienne Vignola-Gagné, Sylvain Besle, and Pascale Bourret. 2018a. “Extending Experimentation: Oncology’s Fading Boundary Bbetween Research and Care.” New Genetics and Society 37 (3): 207–226. doi: 10.1080/14636778.2018.1487281]. Few efforts to implement GTT have reached community oncology practices or patients living in rural communities within the US. Drawing on interdisciplinary research on a state-wide cancer genomics initiative in the rural US state of Maine, this paper explores the valuation practices within community oncologist and cancer stakeholders accounts of “doing good” within genomic science and care. We contribute to STS literatures on the bio-economy by highlighting the affective dimensions of strategies for managing economic and non-economic values. Clinician and stakeholders negotiated de-economizing and capitalizing modes of doing good as they built local genomic platforms “for Maine.” These situated modes of doing good and feeling good via cancer genomics shaped how they navigated the ethical ambiguities of US biomedical markets across the boundaries of research and care.
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影响因子：
28.4
作者：
Cobain EF;Wu YM;Vats P;Chugh R;Worden F;Smith DC;Schuetze SM;Zalupski MM;Sahai V;Alva A;Schott AF;Caram MEV;Hayes DF;Stoffel EM;Jacobs MF;Kumar-Sinha C;Cao X;Wang R;Lucas D;Ning Y;Rabban E;Bell J;Camelo-Piragua S;Udager AM;Cieslik M;Lonigro RJ;Kunju LP;Robinson DR;Talpaz M;Chinnaiyan AM
通讯作者：
Chinnaiyan AM
影响因子：
1.6
作者：
Asdal, Kristin;Cointe, Beatrice;Maloy, Tommas
通讯作者：
Maloy, Tommas
DOI：
10.1158/1055-9965.epi-17-0092
发表时间：
2017-07
期刊：
Cancer epidemiology, biomarkers & prevention : a publication of the American Association for Cancer Research, cosponsored by the American Society of Preventive Oncology
影响因子：
--
作者：
Blake KD;Moss JL;Gaysynsky A;Srinivasan S;Croyle RT
通讯作者：
Croyle RT
影响因子：
3.1
作者：
Benjamin, Ruha
通讯作者：
Benjamin, Ruha
影响因子：
1.6
作者：
Datta Burton, Saheli;Kieslich, Katharina;Prainsack, Barbara
通讯作者：
Prainsack, Barbara