Outcomes from Cochlear Implantation for Child and Family: Parental Perspectives

Outcomes from Cochlear Implantation for Child and Family: Parental Perspectives
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DOI:
10.1002/dei.243
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发表时间:
2008-01-01
影响因子:
1.4
通讯作者:
Gregory, Susan
Gregory, Susan
中科院分区:
其他
文献类型:
--
作者:
Archbold, Sue;Sach, Tracey;Gregory, Susan

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虽然在许多国家,人工耳蜗植入越来越成为重度耳聋儿童的常规治疗,但父母仍然需要有关手术和可能结果的信息,以便做出明智的决定。其他父母可以为他们提供那些经历过这个过程的人的见解,并直接观察结果。101名连续植入儿童的父母完成了问卷调查:人工耳蜗植入儿童:父母的观点。植入时的平均年龄为4.7岁:范围为1.3-12.4岁,86%为先天性耳聋,14%为后天性耳聋。父母回应了74个声明的李克特规模;响应探索植入的过程中已报告在以前的文件。本文分析了报告植入后儿童和家庭的结果的那些答复。父母报告说,他们对植入的结果基本上感到满意:他们的孩子变得更加自信,更加独立,口语的使用得到了极大的发展,家庭内部的沟通得到了改善。与植入前相比,孩子们并不需要更多来自父母的支持,父母给予的支持也更有成效。然而,仍然存在以下问题:父母需要耐心,因为进步需要时间,一些人仍然担心未来的教育,并认为植入的结果没有达到他们的期望。这些儿童被认为依赖于他们的植入系统,因此依赖于植入系统的最佳功能。技术;这就需要长期管理,以确保那些每天处理技术问题的人拥有最佳管理技术的技能和设备。版权所有(C)2008约翰威利父子有限公司
While cochlear implantation is an increasingly routine provision for profoundly deaf children in many countries, parents still require information about the procedure and likely outcomes in order to make an informed decision. Other parents can provide them with the insights of those who have undergone the process themselves and observed outcomes at first hand.The parents of 101 consecutively implanted children completed the questionnaire: Children with cochlear implants: parental perspectives. Average age at implantation was 4.7 years: range 1.3-12.4 years, with 86% percent congenitally deaf, and 14% acquired deafness. Parents responded to 74 statements on a Likert scale; the responses exploring the process of implantation have been reported in a previous paper. Those responses reporting the outcomes for children and families following implantation are analysed in this paper.Parents reported that they were largely satisfied with the outcomes from implantation: that their children developed greater confidence, were more independent, that the use of spoken language had developed greatly and that communication within the family had improved. The children did not need more support from their parents than before implantation and the support parents were giving was more productive.However, there still remained concerns: parents needed to be patient as progress took time, and a number remained concerned about future education and felt that outcomes from implantation had not met their expectations.The children were considered reliant on their implant systems and hence on the optimal functioning of the technology; this demands long-term management to ensure that those dealing with the technology on a daily basis have the skills and equipment to manage them optimally. Copyright (C) 2008 John Wiley & Sons, Ltd.