The influence of resources on perceived functional limitations among women with multiple sclerosis.
The influence of resources on perceived functional limitations among women with multiple sclerosis.
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资源对多发性硬化症女性感知功能限制的影响。
DOI：
10.1097/01376517-200412000-00004
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发表时间：
2004
期刊：
影响因子：
--
通讯作者：
Becker,Heather
中科院分区：
文献类型：
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作者：
Clingerman,Evelyn;Stuifbergen,Alexa;Becker,Heather
这项纵向调查的目的是确定外部资源(即教育、婚姻、就业、社会支持、经济状况)对多发性硬化症(MS)女性认知功能受限轨迹的影响。我们假设这些资源将对MS相关的功能限制产生长期影响。作为对多发性硬化症患者的健康促进和生活质量的纵向研究的一部分，我们使用重复测量的Manova在五个时间点获得的数据来检验假设的关系。我们发现，所有参与者的功能限制分数都随着时间的推移而增加。总体而言，因多发性硬化症而失业的女性一直有较高的功能限制分数，而有工作的女性一直有较低的功能限制分数。社会支持得分较低的女性始终比社会支持得分较高的女性感觉到更大的功能限制。感知经济充分性得分较低的女性始终比感知经济充分性得分较高的女性有更高的功能限制得分。护士和其他医疗保健专业人员处于观察和评估MS女性资源的最佳位置，他们可以使用在场、倾听和观察技能来识别资源耗尽的语言和非语言线索。此外，他们还可以作为多发性硬化症妇女的倡导者，在地方和国家层面上就政策问题和立法发表意见。因此，医疗保健专业人员可以影响那些特别容易受到资源损失影响的人的资源存在，从而使他们能够成功地参与到工作、娱乐和家庭环境中。
colon; The purpose of this longitudinal investigation was to identify the effects of external resources (ie, education, marriage, employment, social support, economic status) on the trajectory of perceived functional limitation among women with multiple sclerosis (MS). We hypothesized that these resources would have a long-term influence upon MS-related functional limitation. As part of a longitudinal study of health promotion and quality of life among persons with MS, we tested hypothesized relationships using data obtained at five time points, using repeated-measures MANOVA. We found that functional limitation scores increased over time for all participants. In general, women who were unemployed as a result of MS consistently had higher functional limitation scores, and employed women consistently had lower functional limitation scores. Women with lower social support scores consistently perceived greater functional limitation than those with higher social support scores. Women with lower perceived-economicadequacy scores consistently had higher functional limitation scores than women with higher perceived-economic-adequacy scores. Nurses and other healthcare professionals are in an optimum position to observe and assess the resources of women with MS. They can use presence, listening, and observational skills to identify verbal and nonverbal cues of resource depletion. In addition, they can act as advocates for women with MS and speak out on policy issues and legislation at the local and national levels. Healthcare professionals can thus influence the presence of resources for those who are particularly vulnerable to resource loss, so they can participate successfully in work, recreational, and home environments.