Patients as partners in a health research agenda setting - The feasibility of a participatory methodology
Patients as partners in a health research agenda setting - The feasibility of a participatory methodology
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DOI：
10.1177/0163278706293406
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发表时间：
2006-12-01
影响因子：
2.9
通讯作者：
Abma, Tineke A.
中科院分区：
文献类型：
--
作者：
Abma, Tineke A.
这篇文章涉及患者参与制定可能直接影响他们生活的健康研究议程。重点是在制定联合研究议程时，非专业人员和医疗专业人员之间遇到的沟通问题。作者认为，参与式方法可以解决这些问题，从而在最有可能影响患者个人的健康研究类型中给予患者“发言权”。文章以脊髓损伤患者参与研究为例，说明了患者参与研究的重要性和价值。该案例还有助于重新思考适当的方法，或者至少通过更多地关注所需的社会条件、多样性和患者的生活世界来修改现有的方法，以促进有意义的参与。
This article deals with the participation of patients in setting the agenda of health research that potentially directly affects their lives. The focus is on the communication problems encountered between lay people medical professionals in developing a joint research agenda. The author argues that a participatory methodology can address these problems and thereby give patients "a say" in the types of health research that have the greatest chance of affecting them personally. The article uses a case example of people with spinal cord injuries participating in research to support the importance and value of patient participation. The case example also helps to rethink appropriate methodologies or at least to modify existing approaches by paying more attention to required social conditions, diversity, and the life world of patients to foster meaningful participation.