Attitudes of patients and staff to research in a specialist palliative care unit
Attitudes of patients and staff to research in a specialist palliative care unit
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DOI：
10.1191/0269216303pm785oa
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发表时间：
2003-01-01
影响因子：
4.4
通讯作者：
Cornbleet, M
中科院分区：
文献类型：
--
作者：
Ross, C;Cornbleet, M
许多专家姑息治疗(SPC)的随机试验都未能招募到足够数量的患者。本研究设计了一份调查问卷，调查某SPC单位住院患者对参与研究的态度。只有50%的患者被认为身体和精神上适合接受采访。40名患者和13名护士被要求表明他们愿意或他们的患者参与总体研究，然后进行三项假设试验。分析了他们做出答复的原因。患者总体上同意参与试验(66%的患者表示“相当满意”或“非常满意”)。护士们强烈支持同一组患者参与研究(92%的患者表示非常高兴或非常高兴)。涉及静脉穿刺术和随机药物分配的最具侵入性的研究的反应最不好(46%的患者和54%的护士感到非常高兴或非常高兴)。一项反射疗法的试验吸引了77%的患者，而62%的患者乐于参加一项涉及情绪评估和采访的研究。阻碍参与意愿的因素包括患者需要保存记录，以及对潜在情绪压力的担忧。护士正确地识别了一些阻止患者的因素，但他们参与试验的意愿往往与患者的意愿不匹配。虽然有少数潜在试验参与者支持在姑息治疗专科病房进行研究，但他们有限的体力和情感储备使他们仔细注意适当的试验设计，这对未来研究的成功至关重要。
Many randomized trials in specialist palliative care (SPC) have failed to recruit sufficient numbers of patients. A questionnaire was designed to assess the attitudes of inpatients of a SPC unit to taking part in research. Only 50% of patients were considered physically and mentally fit for interview. Forty patients and 13 nurses were asked to indicate their willingness to take part, or for their patients to take part, in research in general and then in three hypothetical trials. Reasons for their responses were analysed. The patients were generally agreeable to trial participation (66% 'quite happy` or 'very happy`). The nurses were strongly in favour of research participation for the same group of patients (92% 'quite happy` or 'very happy`). The most invasive study involving venepuncture and random drug allocation had the least favourable response (46% of patients and 54% of nurses 'quite happy` or 'very happy`). A trial of reflexology attracted 77% of patients, while 62% were happy to take part in a study involving mood assessment and interview. Factors deterring willingness to participate included the need for record keeping by the patient and concern about potential emotional strain. The nurses correctly identified some of the factors deterring patients, but often their willingness for trial participation did not match that of the patient. Although there is support for research among the small number of potential trial entrants in specialist palliative care units, their limited physical and emotional reserves make careful attention to appropriate trial design essential to the success of future studies.