Ethical Issues in Patient Data Ownership.
Ethical Issues in Patient Data Ownership.
复制标题
患者数据所有权中的道德问题。
DOI：
10.2196/22269
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发表时间：
2021-05-21
影响因子：
2
通讯作者：
Guddati AK
中科院分区：
文献类型：
--
作者：
Chiruvella V;Guddati AK
患者数据通常被认为受到美国隐私法的很好保护。营利性公司对获取大型医疗保健系统数据库的兴趣日益浓厚，这对保护患者隐私提出了新的挑战。它还引发了与实体分享患者数据的伦理担忧，这些实体可能利用这些数据谋取商业利益，甚至针对弱势群体。认识到大型数据库的每一次机密性泄露都可能使数百万患者面临被利用的风险，这对于制定管理患者数据共享的新规则非常重要。同样，需要解决患者自愿和无私地为研究提供数据的伦理问题，因为医疗保健实体和第三方公司之间共享患者数据，可能会利用这些数据谋取商业利益。人工智能等技术的兴起以及数据供应商公司收集的个人数据的可用性，使美国患者面临被有意或无意地利用的风险，因为他们的医疗保健提供者机构和第三方实体共享他们的数据。
Patient data have conventionally been thought to be well protected by the privacy laws outlined in the United States. The increasing interest of for-profit companies in acquiring the databases of large health care systems poses new challenges to the protection of patients’ privacy. It also raises ethical concerns of sharing patient data with entities that may exploit it for commercial interests and even target vulnerable populations. Recognizing that every breach in the confidentiality of large databases exposes millions of patients to the potential of being exploited is important in framing new rules for governing the sharing of patient data. Similarly, the ethical aspects of data voluntarily and altruistically provided by patients for research, which may be exploited for commercial interests due to patient data sharing between health care entities and third-party companies, need to be addressed. The rise of technologies such as artificial intelligence and the availability of personal data gleaned by data vendor companies place American patients at risk of being exploited both intentionally and inadvertently because of the sharing of their data by their health care provider institutions and third-party entities.