Monitoring for change: the role of family and friends in helping older adults manage personal health information.
Monitoring for change: the role of family and friends in helping older adults manage personal health information.
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监测变化：家人和朋友在帮助老年人管理个人健康信息方面的作用。
DOI：
10.1093/jamia/ocy037
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发表时间：
2018
期刊：
影响因子：
--
通讯作者：
Turner,AnneM
中科院分区：
文献类型：
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作者：
Taylor,JeanO;Hartzler,AndreaL;Osterhage,KatieP;Demiris,George;Turner,AnneM
虽然家人和朋友（FF）通常在老年人（OA）的健康中发挥重要的支持作用，但我们对他们在个人健康信息管理（PHIM）中的作用知之甚少。为了解决这一差距，并告知PHIM工具的设计，我们描述的工作，需求，和障碍的FF在PHIM为OAS.MethodsWe的背景下进行了半结构化的电话采访，52 FF确定的OA是重要的，在他们的健康和PHIM。我们分析了采访成绩单的主题FF信息工作，障碍，和支持needs.ResultsFF发挥支持作用，OA健康维护，医疗遭遇，决策，和日常活动。监测是寻求与OA状态相关信息的持续过程，是一项关键活动，包括3个阶段：检测、解释和行动。监测的障碍包括OA的选择和限制，FF的限制，和困难的技术工具，资源，医疗信息交流供应商之间，社会网络动态，和物理distance.ConclusionsFF经常监测OA福祉的变化，寻求最新的信息，以促进支持OA PHIM。为FF设计的健康信息技术工具可以通过以下方式支持监测的所有阶段：（1）随着OA年龄的增长，及时和细粒度地访问OA健康信息;（2）基于OA临床数据为FF定制健康教育;以及（3）整合授权、志愿服务和相关资源的网络平台，沿着工具，以促进支持OA预约日历和药物管理。这些工具可以减轻OA及其亲人的PHIM负担。
ObjectiveAlthough family and friends (FF) often play a significant support role in the health of older adults (OA), we know little about their role in personal health information management (PHIM). To address this gap and inform the design of PHIM tools, we describe the work, needs, and barriers of FF in the context of PHIM for OAs.MethodsWe conducted semi-structured telephone interviews with 52 FF identified by OA as being important in their health and PHIM. We analyzed interview transcripts for themes about FF information work, barriers, and support needs.ResultsFF play a supportive role in OA health maintenance, medical encounters, decision making, and daily activities. Monitoring, the ongoing process of seeking information related to the OA status, emerged as a key activity comprised of 3 phases: detection, interpretation, and action. Barriers to monitoring included OA choices and constraints, FF constraints, and difficulty with technological tools, resources, health information exchange between providers, social network dynamics, and physical distance.ConclusionsFF frequently monitor for change in OA well-being, seeking up-to-date information to facilitate support of OA PHIM. Health information technology tools designed for FF can support all phases of monitoring by providing: (1) timely and granular levels of access to OA health information as the OA ages; (2) tailored health education for FF that is based on OA clinical data; and (3) networking platforms that integrate delegation, volunteering, and relevant resources, along with tools to facilitate support of OA appointment calendars and medication management. Such tools could reduce the burden of PHIM for OA and their loved ones.