Increasing nursing capacity in genomics: Overview of existing global genomics resources
Increasing nursing capacity in genomics: Overview of existing global genomics resources
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提高基因组学的护理能力：现有全球基因组学资源概述
DOI：
10.1016/j.nedt.2018.06.032
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发表时间：
2018-10-01
影响因子：
3.9
通讯作者：
Middleton, Anna
中科院分区：
文献类型：
--
作者：
Calzone, Kathleen A.;Kirk, Maggie;Middleton, Anna
背景资料。包括护士在内的所有卫生职业的全球基因组素养仍然很低，尽管基因组信息泛滥，具有既定的临床和分析有效性和临床实用价值。基因组素养和能力缺陷导致失去了利用基因组信息提供的好处来改善健康结果、降低医疗成本和提高患者质量和安全性的机会。护士是将基因组学融入医疗保健的关键。在成功融合中实现其潜力的最大挑战包括教育和认识。确定资源、其重点、是否针对护理以及如何获取这些资源是由全球基因组护理联盟领导的全球基因组资源倡议的基础。目的：目的：确定现有的全球基因组资源和能力，确定来源、类型和可获得性。设计：确定现有的基因组资源的横断面在线描述性调查。背景：限于18个国家和7个组织，代表参加2017年全球基因组护理联盟成立会议的代表。参与者：全球护理领导者和国家和国际护理组织的代表的目的性样本。方法：主要方法是在定向网络研讨会后通过在线调查进行。考虑到在我们的样本中(甚至在世界范围内)基因组学领域的护士领导人数很少，结果被分析并描述性地呈现。那些确定资源的报告提供了更详细的资源信息。结果：在23名全球代表中，9名确定了可用于学术或继续基因组教育的现有基因组资源。3个国家有指导学习的能力框架，5个国家有国家遗传学护理组织。结论：现有的基因组资源对国际护理界来说并不容易获得或发现，因此没有得到充分的利用。
Background. Global genomic literacy of all health professions, including nurses, remains low despite an inundation of genomic information with established clinical and analytic validity and clinical utility. Genomic literacy and competency deficits contribute to lost opportunities to take advantage of the benefits that genomic information provides to improve health outcomes, reduce healthcare costs, and increase patient quality and safety. Nurses are essential to the integration of genomics into healthcare. The greatest challenges to realizing their potential in successful integration include education and awareness. Identification of resources, their focus, whether they targeted at nursing, and how to access them, form the foundation for a global genomic resource initiative led by the Global Genomics Nursing Alliance.Objectives: The aim was to identify existing global genomic resources and competencies, identifying the source, type and accessibility.Design: Cross sectional online descriptive survey to ascertain existing genomic resources.Settings: Limited to eighteen countries and seven organizations represented by delegates attending the inaugural meeting in 2017 of the Global Genomics Nursing Alliance.Participants: A purposive sample of global nursing leaders and representatives of national and international nursing organizations.Methods: The primary method was by online survey administered following an orientation webinar. Given the small numbers of nurse leaders in genomics within our sample (and indeed within the world), results were analyzed and presented descriptively. Those identifying resources provided further detailed resource information. Additional data were collected during a face-to-face meeting using an electronic audience-response system.Results: Of the twenty-three global delegates responding, 9 identified existing genomic resources that could be used for academic or continuing genomics education. Three countries have competence frameworks to guide learning and 5 countries have national organizations for genetics nurses.Conclusions: The genomic resources that already exist are not readily accessible or discoverable to the international nursing community and as such are underutilized.