Record linkage in Scotland and its applications to health research
Record linkage in Scotland and its applications to health research
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DOI：
10.1111/j.1365-2702.2011.04021.x
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发表时间：
2012-10-01
影响因子：
4.2
通讯作者：
Penny, Kay I.
中科院分区：
文献类型：
--
作者：
Fleming, Michael;Kirby, Brad;Penny, Kay I.
目的和目标。本文将重点介绍记录链接背后的关键概念，并描述如何概率匹配苏格兰健康记录可以用于国家健康研究。背景记录链接可以将与同一个人相关的两个或多个记录放在一起。这使得来自多个来源的信息能够结合在一起，为研究目的产生更丰富的数据集，并在公共卫生和流行病学研究中具有广泛的适用性。支持记录链接的概率匹配技术使用每个记录上的关键识别信息将基于患者的记录汇集在一起。苏格兰有一个强大的跟踪记录，由于定期收集和维护良好的国家行政卫生数据集，苏格兰记录链接系统的出现和组织，如NHS苏格兰国家服务信息服务司，他们集中持有永久链接的病人为基础的数据库。设计本文描述了一项记录连锁回顾性人群队列研究。方法.本文将先说明目前的联系方法，然后讨论在信息事务司的背景下的典型应用，并侧重于调查腹裂率和风险因素的一项特定联系研究。结果腹裂研究的结论是从分析相关健康数据中得出的典型重要发现。结论.苏格兰在连接卫生研究记录方面的良好记录体现在大量的研究项目、出版物和国家卫生数据概率匹配结果。与临床实践相关。记录链接允许将不同数据源中与同一人有关的信息汇集在一起。概率记录链接可以克服数据质量问题，产生准确的匹配。这允许链接，可分析，基于患者的数据库，能够回答复杂的研究问题，从几个数据源产生，在健康研究领域具有广泛的应用。
Aims and objectives. This paper will focus on the key concepts behind record linkage and describe how probability matching of Scottish health records can be used for national health research. Background. Record linkage can bring together two or more records relating to the same individual. This allows information from multiple sources to be joined together to produce richer data sets for research purposes and has wide applicability in public health and epidemiological research. The probability matching techniques underpinning record linkage bring together records on a patient basis using key identifying information on each record. Scotland has a strong track record for performing linkage for research purposes owing to routinely collected and well-maintained national administrative health data sets, the emergence of the Scottish record linkage system and organisations like the Information Services Division of NHS National Services Scotland who centrally hold permanently linked patient-based databases. Design. A record linkage retrospective population cohort study is described within this paper. Methods. The paper will describe current linkage methodology before discussing typical applications in the setting of Information Services Division and focusing on a particular linkage study investigating rates and risk factors for gastroschisis. Results. Conclusions from the gastroschisis study are typical of the types of important findings drawn from analysing linked health data. Conclusions. Scotlands good track record for linking records for health research is evidenced by the high volume of research projects, publications and findings resulting from probability matching of national health data. Relevance to clinical practice. Record linkage allows information relating to the same person held across different data sources to be brought together. Probabilistic record linkage can overcome data quality issues, producing accurate matches. This allows linked, analysable, patient-based databases, capable of answering complex research questions, to be produced from several data sources with wide applications in the field of health research.