Gene therapy and the public: a matter of trust

Gene therapy and the public: a matter of trust
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DOI:
10.1038/sj.gt.3301752
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发表时间:
2002-06-01
期刊:
影响因子:
5.1
通讯作者:
Gottweis, H
Gottweis, H
中科院分区:
医学3区
文献类型:
--
作者:
Gottweis, H

文献摘要

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基因工程和公众之间的关系从来就不是很和谐。许多科学家认为,公众对基因治疗的担忧仅仅是基于误解和缺乏科学信息。在这种公众的“赤字理论”中,科学与公众互动的大多数困难源于科学家与公众之间存在沟通鸿沟的假设。然而,民意研究清楚地表明,各种“公众”对医学生物技术的看法是不同的,总体上是积极的。基因治疗与社会之间的困难关系,与其说是缺乏信息,不如说是缺乏信任。对于未来,重要的是不仅要关注“教育公众”的理念,而且要找到新的交流和制度形式来产生信任。
The relationship between genetic engineering and the public has never been a very harmonious one. Many scientists believe that public concerns about gene therapy are simply based on misunderstandings and lack of scientific information. In this 'deficit theory' of the public, most difficulties in the interaction between science and the public are derived from the assumption that there is a communication gap between scientists and the public. However, public opinion research shows clearly that the various 'publics' have a differentiated, and generally positive perception of medical biotechnology. It is not so much lack of information, as lack of trust which explains the difficult relationship between gene therapy and society. For the future, it will be crucial not only to focus on the idea of 'educating the public', but to find new communicative and institutional formats to generate trust.