Complete manuscript title: American Indians' Experiences of Life-Threatening Illness and End of Life.
Complete manuscript title: American Indians' Experiences of Life-Threatening Illness and End of Life.
复制标题
完整的手稿标题：美国印第安人对危及生命的疾病和生命终结的经历。
DOI：
10.1097/njh.0000000000000086
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发表时间：
2014
期刊：
影响因子：
--
通讯作者：
Brown,GaryM
中科院分区：
文献类型：
--
作者：
Colclough,YoshikoYamashita;Brown,GaryM
缺乏临终关怀可能会妨碍个人获得最佳的临终体验。美洲印第安人的传统对临终关怀的使用提出了挑战。例如，讨论临终关怀和死亡是禁忌。研究重点是确定部落价值观、影响因素以及有关生命终结的决策。这项研究是通过美洲印第安人社区和大学之间的合作，在美洲印第安人保留地进行的。整个研究采用了基于社区的参与性研究。扎根理论指导了这项研究。研究小组对经历过危及生命疾病的美洲印第安人社区成员进行了采访。这些参与者的临终经历侧重于挣扎的概念，通过寻求知识来应对，以及应用与家庭、社区、精神和医疗保健提供者的联系。大多数参与者通过传统文化价值观和仪式来应对生存的斗争。他们文化上理想的人生终点被认为是作为一个自豪的印度人，并以印度的生活方式度过生命的最后一刻。与会者提出了帮助美洲印第安人克服讨论临终问题的耻辱的建议。
An absence of hospice care may prevent individuals from receiving an optimal end-of-life experience. American Indian traditions pose challenges concerning the use of hospice care. For example, it is taboo to discuss end-of-life care and death. The study focus was identification of tribal values, contributing factors, and decision making regarding end of life. The study was conducted on an American Indian reservation through a partnership between an American Indian community and a university. Community-based participatory research was used throughout the study. Grounded Theory guided this study. Interviews were conducted by the study team among American Indian community members who experienced life-threatening illness. End-of-life experiences for these participants focused on the concept of struggle, coping by seeking knowledge, and applying connectedness to family, community, spirituality, and health care providers. The majority of the participants coped with the struggle through traditional cultural values and ceremonies to reach living. Their culturally ideal end of life was identified as being a proud Indian and living the Indian way of life to the end. Participants offered suggestions to assist American Indians in overcoming the stigma of discussing end-of-life issues.