Quality of life and long-term ventilation.
Quality of life and long-term ventilation.
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生活质量和长期通风。
DOI：
10.1016/s1078-5337(02)00028-x
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发表时间：
2002
期刊：
影响因子：
--
通讯作者：
C. Donner
中科院分区：
文献类型：
--
作者：
M. Carone;C. Donner
在过去十年中，对测量呼吸系统疾病患者HS或QoL的兴趣逐渐增加，但直到最近才将其应用于更严重疾病的患者（即接受LTOT或NIPPV的CRF患者）。CRF对患者日常生活和健康的影响可以通过多种不同的方式来衡量。然而，有证据表明，不可能通过替代措施（如肺活量测定法或运动表现）来预测患者的健康状况，也无法通过生理测量的变化来预测治疗或干预后健康状况的改善程度。只有通过使用有效和可靠的生活质量问卷，才能对HS进行充分的评估。文献中提供了一系列不同的仪器。SGRQ和MRF28已被证明在长期通气患者中适用且可靠。
The interest in measuring HS or QoL in patients with respiratory diseases has increased progressively over the last decade, but only recently has it been applied to patients with more severe disease (ie, patients with CRF who are receiving LTOT or NIPPV). The impact of CRF on the daily life and well being of patients can be measured in a number of different ways. There is evidence, however, that it is not possible to predict patients' health from surrogate measures (eg, spirometry or exercise performance) and that the size of the health gain following treatments or interventions cannot be predicted from changes in physiologic measurements. Adequate assessments of HS can be measured directly only through the use of valid and reliable QoL questionnaires. A range of different instruments is available in the literature. The SGRQ and MRF28 have been shown to be applicable and reliable in patients on long-term ventilation.