Institutional barriers to clinical trial exploration experienced by the Latinx community.
Institutional barriers to clinical trial exploration experienced by the Latinx community.
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DOI：
10.1007/s13187-022-02259-4
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发表时间：
2023-08
影响因子：
1.6
通讯作者：
Sadler, Georgia Robins
中科院分区：
文献类型：
--
作者：
Sandoval, Sabrina;Leung, Ringo K.;Nguyen-Grozavu, France;Wang, Regina M.;Sadler, Georgia Robins
这项研究评估了两种类型的障碍，作者认为在Latinx社区成员探索癌症临床试验的早期阶段，这两种障碍是重要的。其中之一是癌症中心网站上提供的信息的可访问性。另一个是电话应答者的临床试验知识，以及他们对拉美裔来电者询问中心临床试验的热烈欢迎。在这项研究中，模拟临床试验询问电话被打到了国家癌症研究所指定的17个中心。这些中心位于拉丁裔社区至少占人口25%的城市，因此中心范围内鼓励拉丁裔社区探索参与临床试验的努力是合理的。开发了一个标准来确定和量化总分，总分部分由每个癌症中心网站上显示的临床试验信息的可及性组成。一名研究助理通过冒充打电话给癌症中心的人来收集信息，代表一名英语水平有限的家庭成员询问临床试验，并使用一种“神秘购物者”的数据收集方法评估他们的反应。电话应答者传达的热情和欢迎的感觉也被量化，并包括在评分表的总分中。满分反映了一个可能存在的环境，该环境将鼓励Latinx社区成员继续探索临床试验，即消除或减少可能的障碍。可以定期监测欢迎特征，如评分标准中包含的那些元素，以确保中心始终向Latinx社区传达最佳的欢迎感，同时还提供可访问的临床试验信息。在17个癌症中心中，没有发现接受服务的拉丁裔人口的规模与每个中心的总分之间的相关性。
This study evaluated two types of barriers that the authors deemed important to resolve during the early stage of cancer clinical trial exploration by Latinx community members. One was the accessibility of information provided on cancer centers’ websites. The other was the telephone responders’ clinical trial knowledge and their conveyance of a warm welcome to Latinx callers inquiring about the centers’ clinical trials. Simulated clinical trial inquiry calls were made to 17 National Cancer Institute-designated centers in this study. The centers were located in cities where the Latinx community accounted for at least 25% of the population, thereby justifying center-wide efforts to encourage the Latinx community to explore clinical trial participation. A rubric was developed to determine and quantify a Total Score that was partially composed of the accessibility of clinical trial information displayed on each cancer center’s website. A research assistant gathered information by posing as a person calling the cancer center to inquire about clinical trials on behalf of a family member with limited English proficiency and evaluated their response using a “mystery shopper” method of data collection. The warmth and sense of welcome conveyed by the telephone responder was also quantified and included in the rubric’s Total Score. A perfect Total Score reflected the likely existence of an environment that would encourage Latinx community members to continue exploring clinical trials, i.e., removed or diminished possible barriers. Welcoming characteristics, such as those elements included in the scoring rubric, can be monitored regularly to assure that centers are consistently conveying an optimal sense of welcome to the Latinx community, while also providing accessible clinical trial information. Among the 17 cancer centers, no correlation was found between the size of the Latinx population served and each center’s Total Score.
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影响因子：
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作者：
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通讯作者：
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影响因子：
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作者：
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通讯作者：
Potter, JoNell E.
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影响因子：
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通讯作者：
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影响因子：
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Leapman, Michael S.