Relationship of adherence determinants and parental spirituality in cystic fibrosis.

Relationship of adherence determinants and parental spirituality in cystic fibrosis.
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囊性纤维化中依从性决定因素与父母精神的关系。

DOI:
10.1002/ppul.21614
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发表时间:
2012
影响因子:
3.1
通讯作者:
Seid,Michael
Seid,Michael
中科院分区:
医学3区
文献类型:
--
作者:
Grossoehme,DanielH;Opipari-Arrigan,Lisa;VanDyke,Rhonda;Thurmond,Sophia;Seid,Michael

文献摘要

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儿童囊性纤维化(CF)的进展过程受父母遵守治疗计划的影响。理性行动理论(TRA)认为,意图是最好的行为预测因素,而且意图合理地源自信念(“决定因素”)。决定因素受多种“背景因素”的影响,包括灵性。这项研究的目的是了解两个父母遵守的决定因素(治疗态度和自我效能)是否与灵性(宗教应对和身体神圣化)有关。我们假设父母对坚持治疗的态度与这些精神结构有关。3-12岁儿童(n = 28)的父母作为方便样本,在定期门诊就诊期间完成依从性和灵性的调查。采用主成分分析对宗教应对的类型和程度进行检验。采用不配对t检验,比较了基于宗教应对方式和身体神圣化的遵守措施。协作性宗教应对与完成呼吸道通畅(M = 1070.8;SD = 35.8;P= 0.012)、雾化给药(M = 1077.1;SD = 37.4;P= 0.018)和对治疗效用的态度(M = 38.8;SD = 2.36;P= 0.038)相关。那些将神圣品质归因于孩子身体的父母(如“有福的”或“神奇的”)在自我效能上的平均得分较高(呼吸道通气性,M = 1058.6;SD = 37.7%;P= 0.023;气雾剂M = 1070.8;SD = 41.6%;P= 0.020)。在呼吸道清除(M = 1056.4;SD = 59.0;P= 0.039)、雾化药物(M = 1068.8;SD = 42.6;P= 0.033)和治疗效用(M = 38.8;SD = 2.4;P= 0.025)方面的自我效能得分较高。精神结构显示出有希望的意义,目前在慢性病管理中被低估。儿科肺单醇。2012;47:558-566。©2011 Wiley期刊,Inc.
The course of cystic fibrosis (CF) progression in children is affected by parent adherence to treatment plans. The Theory of Reasoned Action (TRA) posits that intentions are the best behavioral predictors and that intentions reasonably follow from beliefs (“determinants”). Determinants are affected by multiple “background factors,” including spirituality. This study's purpose was to understand whether two parental adherence determinants (attitude towards treatment and self‐efficacy) were associated with spirituality (religious coping and sanctification of the body). We hypothesized that parents' attitudes toward treatment adherence are associated with these spiritual constructs. A convenience sample of parents of children with CF aged 3–12 years (n = 28) participated by completing surveys of adherence and spirituality during a regular outpatient clinic visit. Type and degree of religious coping was examined using principal component analysis. Adherence measures were compared based on religious coping styles and sanctification of the body using unpairedt‐tests. Collaborative religious coping was associated with higher self‐efficacy for completing airway clearance (M = 1070.8; SD = 35.8;P= 0.012), for completing aerosolized medication administration (M = 1077.1; SD = 37.4;P= 0.018), and for attitude towards treatment utility (M = 38.8; SD = 2.36;P= 0.038). Parents who attributed sacred qualities to their child's body (e.g., “blessed” or “miraculous”) had higher mean scores for self‐efficacy (airway clearance, M = 1058.6; SD = 37.7;P= 0.023; aerosols M = 1070.8; SD = 41.6;P= 0.020). Parents for whom God was manifested in their child's body (e.g., “My child's body is created in God's image”) had higher mean scores for self‐efficacy for airway clearance (M = 1056.4; SD = 59.0;P= 0.039), aerosolized medications (M = 1068.8; SD = 42.6;P= 0.033) and treatment utility (M = 38.8; SD = 2.4;P= 0.025). Spiritual constructs show promising significance and are currently undervalued in chronic disease management. Pediatr Pulmonol. 2012; 47:558–566. © 2011 Wiley Periodicals, Inc.