Seeking connection: family care experiences following long-term dementia care placement
Seeking connection: family care experiences following long-term dementia care placement
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DOI：
10.1111/j.1365-2702.2009.02878.x
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发表时间：
2009-11-01
影响因子：
4.2
通讯作者：
McAllister, Margaret
中科院分区：
文献类型：
--
作者：
Bramble, Marguerite;Moyle, Wendy;McAllister, Margaret
瞄准概述了在澳大利亚布里斯班的家庭照顾者的经验，他们将一位患有痴呆症的亲属置于长期护理中。虽然澳大利亚的老年护理文献强调了越来越多的痴呆症患者接受长期护理，但探索家庭和工作人员关系及其对护理质量影响的实证研究仍然有限。国际研究表明，向长期护理的过渡对痴呆症患者的家庭和患者来说都是有压力的，通常会导致持续的家庭和工作人员冲突。本研究采用描述性定性设计。一个有目的的样本10名参与者从一个大型的研究，测试了教育干预参加了定性阶段的混合方法，序贯设计研究。采用半结构式访谈和验证性主题分析的方法，对长期照护家庭成员的照护经验进行研究。调查结果强调，越来越多的隔离和照顾家庭入院前，这往往是永久的长期护理安置，并可能提出与照顾不满的负担。改善工作人员与家庭的关系有可能减少冲突，改善长期护理环境，减轻工作负担的压力，减少工作人员的挫折感，减少对家庭照顾者的负面反应。研究结果强调了长期护理设施的关键需求，以支持家庭以及痴呆症患者，通过过渡到护理环境。由此产生的改善与工作人员的家庭关系，基于谈判和增加知识的痴呆症护理，然后可以提供潜力，开发更专业的循证痴呆症护理和服务提供。
Aim. To outline the experiences of family caregivers in Brisbane, Australia who have placed a relative with dementia into long-term care.Background. Whilst the aged care literature in Australia highlights the rising numbers of people with dementia admitted to long-term care, empirical research exploring family and staff relationships and their influence on quality of care remains limited. International research demonstrates that the transition to long-term care is stressful for families and the person with dementia, often resulting in ongoing family and staff conflict.Design. The study utilised a descriptive qualitative design.Methods. A purposive sample of 10 participants from a large study that tested an education intervention took part in the qualitative phase of this mixed method, sequential design study. Semi-structured interviews and confirmatory thematic analysis were used to identify family caregiver experiences following placement of their relative in long-term care.Results. The findings emphasise the increasing isolation and burden of care felt by families prior to admission, which often is perpetuated during long-term care placement and may present as dissatisfaction with care.Conclusions. Improving staff-family relationships has the potential to reduce conflict and to improve the long-term care environment, relieve the pressure of work overload, decrease staff frustration and reduce negative reactions to family caregivers.Relevance to clinical practice. The findings highlight the crucial need for long-term care facilities to support families, as well as the person with dementia, through the transition to the care environment. The resulting improved family relationships with staff, based on negotiation and increasing knowledge of dementia care, can then provide potential to develop more specialised evidence-based dementia care and service delivery.