Prospective parents' perspectives on antenatal decision making for the anticipated birth of a periviable infant
Prospective parents' perspectives on antenatal decision making for the anticipated birth of a periviable infant
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DOI：
10.1080/14767058.2017.1393066
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发表时间：
2019-03-04
影响因子：
1.8
通讯作者：
Kavanaugh, Karen
中科院分区：
文献类型：
--
作者：
Edmonds, Brownsyne Tucker;Savage, Teresa A.;Kavanaugh, Karen
目的：探讨未来父母对先兆围产期分娩的管理选择和结局的看法，以及他们在此期间做出产前决定时所适用的价值观。研究设计：定性分析46产前访谈进行了三个三级保健医院与54个准父母（40名孕妇，14名合作伙伴）谁接受了咨询的威胁围产期分娩（40例）。结果：参与者最常回忆的是参与复苏、环扎和分娩方式的决定。超过一半（63.0%）的人希望共同决策。大多数人（85.2%）回忆起听到的发病率和死亡率，其中许多人重复的术语，如“脑损伤”，“残疾”和“残疾”。残疾的可能性在不同程度上影响了决策。在描述最重要的事情时，与会者谈到给他们的孩子一个“战斗的机会”;其他人则对“最佳利益”、“健康的婴儿”、“痛苦和苦难”以及宗教信仰表示关切。结论：我们的研究结果强调了提供有关残疾的明确信息的重要性，并引出了父母在做出围产期分娩决定时认为最重要的因素。
Objective: To examine prospective parents' perceptions of management options and outcomes in the context of threatened periviable delivery, and the values they apply in making antenatal decisions during this period. Study design: Qualitative analysis of 46 antenatal interviews conducted at three tertiary-care hospitals with 54 prospective parents (40 pregnant women, 14 partners) who had received counseling for threatened periviable delivery (40 cases). Results: Participants most often recalled being involved in resuscitation, cerclage, and delivery mode decisions. Over half (63.0%) desired a shared decision-making role. Most (85.2%) recalled hearing about morbidity and mortality, with many reiterating terms like "brain damage", "disability", and "handicap". The potential for disability influenced decision making to variable degrees. In describing what mattered most, participant spoke of giving their child a "fighting chance"; others voiced concerns about "best interest", a "healthy baby", "pain and suffering", and religious faith. Conclusions: Our findings underscore the importance of presenting clear information on disability and eliciting the factors that parents deem most important in making decisions about periviable birth.