Top 10 research priorities relating to life after stroke - consensus from stroke survivors, caregivers, and health professionals
Top 10 research priorities relating to life after stroke - consensus from stroke survivors, caregivers, and health professionals
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DOI：
10.1111/j.1747-4949.2012.00942.x
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发表时间：
2014-04-01
影响因子：
6.7
通讯作者：
Firkins, Lester
中科院分区：
文献类型：
--
作者：
Pollock, Alex;St George, Bridget;Firkins, Lester
研究资源应该解决对受特定医疗保健问题影响的人们最重要的问题。系统地确定中风幸存者、护理人员和卫生专业人员的优先事项，将确保稀缺的研究资源被定向到对中风患者最重要的领域。我们旨在确定中风幸存者、护理人员和卫生专业人员同意的与中风后生活有关的十大研究重点。关键阶段包括建立确定优先事项的伙伴关系；从中风幸存者、照顾者和卫生专业人员那里收集与中风后生活有关的治疗不确定性（通过电子邮件、邮寄和面对面会议进行调查）；检查提交的治疗不确定性，以确保它们是关于治疗/干预效果的明确、未回答的问题；确定最高优先级问题的临时优先级（根据原始调查受访者的个人优先级客观确定）；并召开最终共识会议，就十大研究重点达成一致。结果我们收集了548个研究问题，提炼成226个独特的未回答的治疗不确定性。97名受访者完成了临时优先排序过程，客观地确定了24个共同优先处理的不确定性。由28名中风幸存者、护理人员和卫生专业人员组成的代表小组参加了最后一次会议，就与中风后生活有关的十大研究重点达成了共识。商定的十大研究重点中有六个与特定的中风相关损伤有关，包括认知、失语、视力、上肢、行动能力和疲劳。其中三个与中风患者生活的社会方面有关，包括接受长期后果，信心，以及帮助中风幸存者及其家人应对语言问题。其中一个与中风的继发性后果和随后的中风预防有关。结论：采用严格的以人为本的方法确定了与中风后生活相关的十大研究重点。这些数据应用于确定未来与中风后生活相关研究的优先顺序和资助。
BackgroundResearch resources should address the issues that are most important to people affected by a particular healthcare problem. Systematic identification of stroke survivor, caregiver, and health professional priorities would ensure that scarce research resources are directed to areas that matter most to people affected by stroke.AimsWe aimed to identify the top 10 research priorities relating to life after stroke, as agreed by stroke survivors, caregivers, and health professionals.MethodsKey stages involved establishing a priority setting partnership; gathering treatment uncertainties from stroke survivors, caregivers, and health professionals relating to life after stroke (using surveys administered by e-mail, post, and at face-to-face meetings); checking submitted treatment uncertainties to ensure that they were clear, unanswered questions about the effects of a treatment/intervention; interim prioritization to identify the highest priority questions (objectively identified from ranking of personal priorities by original survey respondents); and a final consensus meeting to reach agreement on the top 10 research priorities.ResultsWe gathered 548 research questions that were refined into 226 unique unanswered treatment uncertainties. Ninety-seven respondents completed the interim prioritization process, objectively identifying 24 shared priority treatment uncertainties. A representative group of 28 stroke survivors, caregivers, and health professionals attended a final meeting, reaching consensus on the top 10 research priorities relating to life after stroke. Six of the agreed top 10 research priorities related to specific stroke-related impairments, including cognition, aphasia, vision, upper limb, mobility, and fatigue. Three related to more social aspects of living with stroke' including coming to terms with long-term consequences, confidence, and helping stroke survivors and their families cope' with speech problems. One related to the secondary consequences of stroke and subsequent stroke prevention.ConclusionsThe top 10 research priorities relating to life after stroke have been identified using a rigorous and person-centered approach. These should be used to inform the prioritization and funding of future research relating to life after stroke.