Patient participation in care and rehabilitation from the perspective of patients with spinal cord injury
Patient participation in care and rehabilitation from the perspective of patients with spinal cord injury
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DOI：
10.1038/sc.2013.97
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发表时间：
2013-11-01
期刊：
影响因子：
2.2
通讯作者：
Person, L-O
中科院分区：
文献类型：
--
作者：
Lindberg, J.;Kreuter, M.;Person, L-O
研究设计：定性方法，半结构化interviews.Objectives：本研究的目的是探讨患者参与护理和康复的意义，从患者的角度与脊髓injury（SCI）.Setting：出院后社区setting.Methods：半结构化访谈进行了10人SCI代表不同的年龄，性别和损伤程度。所有的访谈都单独进行，历时40-120分钟。访谈进行了口头转录和数据进行了分析，通过内容analysis.Results：所有的受访者强调的重要性，病人的参与作为一个必要的先决条件，成功的护理和康复，但强调，参与必须根据每个病人自己的喜好，能力和需求。他们还强调，工作人员应敏感地认识到，不同病人以及同一病人在康复过程中，所需的参与程度和种类可能各不相同。五个主题反映了中央方面的参与出现：尊重和诚信，规划和决策，信息和知识，动机和鼓励，并参与family.Conclusions：患者的参与是成功的SCI康复的一个重要组成部分，必须促进，促进和适合每个病人的工作人员。根据这项研究的结果，已经开发了一份问卷，用于评估患者参与康复的五个领域的经验，作为一种工具，以帮助评估提供的护理和确定患者的参与偏好。
Study design: Qualitative method, semi-structured interviews.Objectives: The aim of the study was to explore the meaning of patient participation in care and rehabilitation from the perspective of patients with spinal cord injury (SCI).Setting: Post discharge community setting.Methods: Semi-structured interviews were performed with 10 persons with SCI representing different ages, gender and levels of injury. All interviews were conducted individually and lasted 40-120 min. The interviews were verbally transcribed and the data were analyzed by means of content analysis.Results: All informants stressed the importance of patient participation as a necessary prerequisite for successful care and rehabilitation, but emphasized that participation must be tailored to each patient's own preferences, capacities and needs. They also underscored that the staff should be sensitive and responsive to the fact that desired levels and kinds of participation may vary from patient to patient, as well as for the same patient during the course of the rehabilitation. Five themes reflecting central aspects of participation emerged: respect and integrity, planning and decision-making, information and knowledge, motivation and encouragement, and involvement of family.Conclusions: Patient participation is a critical component of successful SCI rehabilitation and must be facilitated, promoted and tailored to each patient by the staff. Based on the finding from this study a questionnaire has been developed for assessing patient experiences of five domains of participation in rehabilitation to serve as a tool to help in evaluating provided care and in identifying patients' preferences for participation.