A 'healthy baby': The double imperative of preimplantation genetic diagnosis
A 'healthy baby': The double imperative of preimplantation genetic diagnosis
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DOI：
10.1177/1363459309347477
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发表时间：
2010-01-01
期刊：
影响因子：
2.1
通讯作者：
Williams, Clare
中科院分区：
文献类型：
--
作者：
Ehrich, Kathryn;Williams, Clare
本文报道了一项研究，该研究探索了构成和产生“道德问题”的社会过程、意义和制度，以及为从业者、科学家和其他从事胚胎植入前遗传学诊断 (PGD) 专业工作的人员带来的临床困境。数据中的一个主要主题是，与 IVF 相比，PGD 的目的是仅将那些可能不受严重遗传疾病影响的胚胎移植到女性子宫中；也就是说，生出“健康的婴儿”。工作人员描述了每个治疗周期中的胚胎必须满足双重要求的复杂过程：胚胎学家必须判断它们是可行的，并且遗传学家“不受影响”。在本文中，我们重点关注 PGD 双重要求所带来的员工道德、社会和职业问题。
This article reports from a study exploring the social processes, meanings and institutions that frame and produce 'ethical problems' and clinical dilemmas for practitioners, scientists and others working in the specialty of preimplantation genetic diagnosis (PGD). A major topic in the data was that, in contrast to IVF, the aim of PGD is to transfer to the woman's womb only those embryos likely to be unaffected by serious genetic disorders; that is, to produce 'healthy babies'. Staff described the complex processes through which embryos in each treatment cycle must meet a double imperative: they must be judged viable by embryologists and 'unaffected' by geneticists. In this article, we focus on some of the ethical, social and occupational issues for staff ensuing from PGD's double imperative.