What sources of bereavement support are perceived helpful by bereaved people and why? Empirical evidence for the compassionate communities approach.

What sources of bereavement support are perceived helpful by bereaved people and why? Empirical evidence for the compassionate communities approach.
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丧亲的人认为哪些丧亲支持的来源对此有所帮助?为什么?富有同情心的社区方法的经验证据。

DOI:
10.1177/0269216318774995
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发表时间:
2018-09
影响因子:
4.4
通讯作者:
Kellehear A
Kellehear A
中科院分区:
医学2区
文献类型:
--
作者:
Aoun SM;Breen LJ;White I;Rumbold B;Kellehear A

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为了确定谁提供丧亲之痛的支持,在社区中,什么来源被认为是最有帮助或最少的,出于什么原因,并确定最佳的支持,在开发任何未来的同情社区的姑息治疗方法的经验因素。一项基于人群的丧亲经历横断面调查。支持来源(非正式的,社区和专业)进行了分类,根据公共卫生模式的丧亲支持,最有帮助的原因进行了分类,使用社会规定量表,和最少的帮助进行了分析,使用归纳内容分析。通过匿名邮寄调查(2013-2014),从澳大利亚葬礼提供商的数据库中招募了丧亲者。共有678名丧亲者对调查作出了回应。最常用的支助来源是非正式类别,如家人、朋友和丧葬承办人。虽然专业类别的来源是最少使用的,他们有最高的比例,而最低比例的无用感是在非正式类别。帮助支持的功能类型为依恋、可靠联盟、社会融合和指导。五个最没有帮助的支持主题是:不敏感,缺乏预期的支持,糟糕的建议,缺乏同情心和系统性障碍。应采取公共卫生办法,例如富有同情心的社区政策和做法,为大多数丧失亲人的人提供支助,因为这种支助大部分已经由参与最近丧失亲人者日常生活的各种人在非正式和其他社区环境中提供。这项研究提供了进一步的支持,需要加强同情社区的做法,不仅为临终病人的生命关怀,而且沿着丧亲之痛的连续支持。
To determine who provides bereavement support in the community, what sources are perceived to be the most or least helpful and for what reason, and to identify the empirical elements for optimal support in developing any future compassionate communities approach in palliative care. A population-based cross-sectional investigation of bereavement experiences. Sources of support (informal, community and professional) were categorised according to the Public Health Model of Bereavement Support; most helpful reasons were categorised using the Social Provisions Scale, and least helpful were analysed using inductive content analysis. Bereaved people were recruited from databases of funeral providers in Australia via an anonymous postal survey (2013–2014). In total, 678 bereaved people responded to the survey. The most frequently used sources of support were in the informal category such as family, friends and funeral providers. While the professional category sources were the least used, they had the highest proportions of perceived unhelpfulness whereas the lowest proportions of unhelpfulness were in the informal category. The functional types of helpful support were Attachment, Reliable Alliance, Social Integration and Guidance. The five themes for least helpful support were: Insensitivity, Absence of Anticipated Support, Poor Advice, Lack of Empathy and Systemic Hindrance. A public health approach, as exemplified by compassionate communities policies and practices, should be adopted to support the majority of bereaved people as much of this support is already provided in informal and other community settings by a range of people already involved in the everyday lives of those recently bereaved. This study has provided further support for the need to strengthen the compassionate communities approach, not only for end of life care for dying patients but also along the continuum of bereavement support.
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