Conceptual and design issues in instrument development for research with bereaved parents.
Conceptual and design issues in instrument development for research with bereaved parents.
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DOI：
10.2190/om.65.2.e
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发表时间：
2012
期刊：
影响因子：
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通讯作者：
Meert KL
中科院分区：
文献类型：
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作者：
Briller SH;Schim SM;Thurston CS;Meert KL
在美国，许多儿童死亡发生在儿科重症监护病房（PICU），父母在这种死亡背景下有特殊的需求。作为一个跨学科的研究团队，我们讨论了在创建一个新的工具，失去亲人的父母需求评估-PICU，在这种情况下评估父母的需求遇到的概念和设计问题。使用定性的方法，我们的团队以前探讨了如何在一个城市中西部儿童医院PICU提供护理的文化和相关的方式影响父母的丧亲之痛的需求和经验。我们描述了使用这种定性的基础上开发一种新的定量工具，以更广泛地验证和衡量丧亲父母的需要周围的时间，一个孩子的死亡在多个PICU。我们强调了一系列的问题，值得考虑在设计一个研究工具，为这一弱势群体，包括设置和背景，格式和内容，时间性，招聘和内容的专业知识。
Many childhood deaths in the United States occur in pediatric intensive care units (PICUs) and parents have special needs in this death context. As an interdisciplinary research team, we discuss conceptual and design issues encountered in creating a new instrument, the Bereaved Parent Needs Assessment–PICU, for assessing parents’ needs in this setting. Using a qualitative approach, our team previously explored how the culture and related ways of providing care in one urban Midwestern children’s hospital PICU affected parents’ bereavement needs and experiences. We describe using this qualitative foundation in the development of a new quantitative instrument to more widely validate and measure bereaved parents’ needs around the time of a child’s death across multiple PICUs. We highlight a series of issues that warrant consideration in designing a research instrument for this vulnerable population including setting and context, format and content, temporality, recruitment, and content expertise.