Validation of the National Institutes of Health Patient-Reported Outcomes Measurement Information System Survey as a Quality-of-Life Instrument for Patients with Malignant Brain Tumors and Their Caregivers

Validation of the National Institutes of Health Patient-Reported Outcomes Measurement Information System Survey as a Quality-of-Life Instrument for Patients with Malignant Brain Tumors and Their Caregivers
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DOI:
10.1016/j.cnur.2015.07.009
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发表时间:
2015-12-01
影响因子:
2
通讯作者:
Conklin, Samantha
Conklin, Samantha
中科院分区:
医学4区
文献类型:
--
作者:
Romero, Melissa M.;Flood, Lisa Sue;Conklin, Samantha

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目前,缺乏用于衡量恶性脑肿瘤患者及其护理人员生活质量的经过充分验证的调查。这项试点研究的主要目的是验证美国国立卫生研究院患者报告结果测量信息系统 (NIH PROM IS) 调查是否可用作该人群的生活质量测量。本文介绍了使用 NIH PROMIS 仪器作为恶性脑肿瘤患者及其护理人员生活质量衡量标准的基本原理。
At present there is a lack of well-validated surveys used to measure quality of life in patients with malignant brain tumors and their caregivers. The main objective of this pilot study was to validate the National Institutes of Health Patient-Reported Outcomes Measurement Information System (NIH PROM IS) survey for use as a quality-of-life measure in this population. This article presents the rationale for using the NIH PROMIS instrument as a quality-of-life measure for patients with malignant brain tumors and their caregivers.