The research priorities of patients attending UK cancer treatment centres: findings from a modified nominal group study
The research priorities of patients attending UK cancer treatment centres: findings from a modified nominal group study
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DOI：
10.1038/sj.bjc.6603662
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发表时间：
2007-03-26
影响因子：
8.8
通讯作者：
Foster, C.
中科院分区：
文献类型：
--
作者：
Corner, J.;Wright, D.;Foster, C.
人们越来越多地就医疗保健和研究优先事项征求公众的意见。然而，患者参与确定癌症研究重点的程度仍然不够。本文介绍了与英国癌症患者就研究重点进行的首次咨询的结果。该研究采用了参与式方法，采用协作模式，寻求与癌症患者共同参与研究。使用了探索性的定性方法。协商小组是主要方法，结合了焦点小组和名义小组技术。共有 17 组患者参加，共有 105 名患者，广泛代表了英国癌症人群。确定了十五个研究领域。最优先领域包括癌症对生活的影响、如何与癌症共存以及相关的支持问题；癌症的危险因素和原因；及早发现和预防。尽管生物和治疗相关的科学方面被认为很重要，但患者将实际、社会和情感问题的管理视为更优先的事项。参与者确定的研究重点与英国当前的研究组合之间存在不匹配。当前的研究活动应该扩大，以反映受该疾病影响的人们的优先事项。
Members of the public are increasingly consulted over health care and research priorities. Patient involvement in determining cancer research priorities, however, has remained underdeveloped. This paper presents the findings of the first consultation to be conducted with UK cancer patients concerning research priorities. The study adopted a participatory approach using a collaborative model that sought joint ownership of the study with people affected by cancer. An exploratory, qualitative approach was used. Consultation groups were the main method, combining focus group and nominal group techniques. Seventeen groups were held with a total of 105 patients broadly representative of the UK cancer population. Fifteen areas for research were identified. Top priority areas included the impact cancer has on life, how to live with cancer and related support issues; risk factors and causes of cancer; early detection and prevention. Although biological and treatment related aspects of science were identified as important, patients rated the management of practical, social and emotional issues as a higher priority. There is a mismatch between the research priorities identified by participants and the current UK research portfolio. Current research activity should be broadened to reflect the priorities of people affected by the disease.