Burden in caregivers of older adults with advanced illness.

Burden in caregivers of older adults with advanced illness.
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DOI:
10.1111/j.1532-5415.2010.03177.x
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发表时间:
2010-12
影响因子:
6.3
通讯作者:
Fried TR
Fried TR
中科院分区:
医学1区
文献类型:
--
作者:
Garlo K;O'Leary JR;Van Ness PH;Fried TR

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研究晚期慢性病患者照顾者随时间变化的照顾者负担。观察性队列,访谈超过12个月。照顾者年龄为60岁的≥晚期癌症、心力衰竭或慢性阻塞性肺病患者。照顾者负担评估使用Zarit负担问卷(ZBI)的简写形式来衡量心理社会苦恼。在基线上,照顾者负担的中位数是5(四分位数范围[IQR 1,11]),这表明照顾者至少在某些时候认可有10种痛苦的担忧中的2种。只有10%的人表示没有负担。尽管分数随着时间的推移略有增加,但在纵向多变量分析中,时间和负担之间的关联并不显著。高负担与照顾者在日常工作中需要更多帮助(优势比[OR]=23.13,95%可信区间[CI]=5.94,90.06)和渴望与患者进行更多沟通(OR=2.53,95%CI=1.16,5.53)相关。纵向多变量分析没有得出负担与患者的社会人口学或健康特征相关的证据。照顾者的负担在癌症、心力衰竭和慢性阻塞性肺病患者的照顾者中很常见。高负担与照顾者报告在日常任务中需要更多帮助有关,但与患者需要帮助的客观衡量标准无关,如症状或功能状态,这表明负担可能是照顾者适应照顾者角色的能力的衡量标准。
To examine caregiver burden over time among caregivers of patients with advanced chronic disease. Observational cohort with interviews over 12 months. Caregivers of 179 community-living persons age ≥ 60 years with advanced cancer, heart failure (HF), or chronic obstructive pulmonary disease (COPD). Caregiver burden assessed using a short-form of the Zarit Burden Inventory (ZBI) to measure psychosocial distress. At baseline, the median caregiver burden was 5 (interquartile range [IQR 1,11]), which indicates that the caregiver endorsed having at least 2 of 10 distressing concerns at least some of the time. Only 10% reported no burden. Although scores increased modestly over time, the association between time and burden was not significant in longitudinal multivariable analysis. High burden was associated with caregivers’ need for more help with daily tasks (odds ratio [OR] = 23.13, 95% confidence interval [CI] = 5.94, 90.06) and desire for greater communication with the patient (OR = 2.53, 95% CI = 1.16, 5.53). The longitudinal multivariable analysis did not yield evidence of associations of burden with patient sociodemographic or health characteristics. Caregiver burden was common among caregivers of patients with cancer, HF, and COPD. High burden was associated with the caregiver’s report of need for greater help with daily tasks but not with objective measures of the patient’s need for assistance, such as symptoms or functional status, suggesting that burden may be a measure of the caregiver’s ability to adapt to the caregiving role.
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