Public education materials about Vascular Composite Allotransplantation and donation in the United States: Current scope and limitations
Public education materials about Vascular Composite Allotransplantation and donation in the United States: Current scope and limitations
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DOI：
10.1111/ctr.14066
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发表时间：
2020-10-05
影响因子：
2.1
通讯作者：
Henderson, Macey L.
中科院分区：
文献类型：
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作者：
Van Pilsum Rasmussen, Sarah E.;Uriarte, Jefferson;Henderson, Macey L.
随着血管复合同种异体移植（VCA）领域的发展，对VCA捐赠的需求将增加。应让公众了解这一治疗方案，以支持病人在知情的情况下作出决定，并授权死者捐献器官。我们评估了来自器官采购组织（OPO）、移植中心、器官采购和移植网络、退伍军人事务部和国防部的现有VCA公共教育材料的可用性和质量。进行了内容分析，以确定所涵盖的主题和重要差距。总共分析了1314份公共教育材料，包括OPO Facebook帖子（61.6%），OPO Twitter帖子（29.9%），网站（6.4%）和书面文件（例如，情况说明书，研究报告）（2.1%）。上肢（34.7%）和面部（34.5%）移植比生殖（6.4%）或其他VCA类型（2.8%）更常见。大多数材料（76.6%）提到了一个具体的VCA故事。然而，很少有材料描述哪些患者人群可以从VCA中受益（例如，退伍军人，截肢者，烧伤患者，16.4%），VCA捐赠的授权要求（6.6%）或移植的VCA器官的外观（1.2%）。目前VCA的公共教育材料没有充分教育公众。需要更全面的教育材料来帮助公众授权VCA捐赠，成为潜在的捐赠者，或了解移植选择。
As the field of Vascular Composite Allotransplantation (VCA) grows, demand for VCA donations will increase. The public should be made aware of this treatment option to support patients' informed decision-making and authorization for deceased donation. We assessed the availability and quality of existing VCA public education materials from organ procurement organizations (OPOs), transplant centers, the Organ Procurement and Transplant Network, Veterans Affairs, and the Department of Defense. A content analysis was performed to identify topics covered and important gaps. In total, 1314 public education materials were analyzed, including OPO Facebook posts (61.6%), OPO Twitter posts (29.9%), websites (6.4%), and written documents (eg, fact sheets, research reports) (2.1%). Upper extremity (34.7%) and face (34.5%) transplants were more commonly covered than reproductive (6.4%) or other VCA types (2.8%). Most materials (76.6%) referenced a specific VCA story. However, few materials described which patient population could benefit from VCA (eg, Veterans, amputees, burn victims, 16.4%), the authorization requirements for VCA donation (6.6%), or the appearance of transplanted VCA organs (1.2%). Current VCA public education materials do not adequately educate the public. More comprehensive education materials are needed to prepare the public to authorize VCA donation, become potential donors, or learn about transplant options.