Development of the Adult Epilepsy Self-Management Measurement Instrument (AESMMI)
Development of the Adult Epilepsy Self-Management Measurement Instrument (AESMMI)
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DOI：
10.1016/j.yebeh.2015.07.025
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发表时间：
2015-09-01
影响因子：
2.6
通讯作者：
Hatfield, Katherine
中科院分区：
文献类型：
--
作者：
Escoffery, Cam;Bamps, Yvan;Hatfield, Katherine
癫痫自我管理是人们为最大限度地控制癫痫发作、尽量减少癫痫症的影响以及最大限度地提高生活质量而采取的所有步骤的总和。作为仪器开发分阶段方法的一部分，我们对来自多个研究中心的 422 名癫痫成人患者收集的涵盖 10 个自我管理领域的癫痫自我管理项目的数据进行了描述性分析。参与者最常报告执行与管理治疗和耻辱、信息寻求、管理症状以及与提供者沟通相关的一系列行为。报告频率较低的行为与寻求社会支持和参与健康行为有关。在收入、性别和教育水平方面发现了这些领域的显着差异，但在其他不同的人口统计变量方面则没有显着差异。配套文章中报告的后续分析阶段将使用因子分析来识别和验证域的子尺度结构。 (C) 2015 Elsevier Inc. 保留所有权利。
Epilepsy self-management is the total sumof steps that people perform to maximize seizure control, to minimize the impact of having a seizure disorder, and to maximize quality of life. As part of a phased approach to instrument development, we conducted descriptive analyses of data from epilepsy self-management items covering 10 domains of self-management gathered from 422 adults with epilepsy from multiple study sites. Participants most frequently reported performing sets of behaviors related to managing treatment and stigma, information seeking, managing symptoms, and communicating with providers. Behaviors reported with lower frequency were related to seeking social support and engaging in wellness behaviors. Significant differences for the domains were found for income, gender, and education levels but not for other different demographic variables. A subsequent analytic phase, reported in a companion article, will use factor analysis to identify and validate the subscale structure of the domains. (C) 2015 Elsevier Inc. All rights reserved.