Development of a Digital Tool for People With a Long-Term Condition Using Stroke as a Case Example: Participatory Design Approach.
Development of a Digital Tool for People With a Long-Term Condition Using Stroke as a Case Example: Participatory Design Approach.
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DOI：
10.2196/35478
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发表时间：
2022-06-03
影响因子：
2.7
通讯作者：
Carlsson, Gunnel
中科院分区：
文献类型：
--
作者：
Kjork, Emma K.;Sunnerhagen, Katharina S.;Lundgren-Nilsson, Asa;Andersson, Anders K.;Carlsson, Gunnel
关键词：
在患者护理领域，对数字医疗工具的需求不断增长，以实现远程服务并增强患者参与。慢性病患者通常有多种健康问题，建议进行长期随访以满足他们的需求并获得适当的支持。用于预访准备的数字工具可以提高时间效率，并引导就诊期间的对话朝着患者的优先事项进行。本研究旨在开发一种数字预访工具，并以中风为例，使用参与式方法探索潜在最终用户的看法。该数字工具是根据服务设计原则开发和原型设计的，并根据定性参与者数据和专家小组的反馈提供信息。所有功能均在包括患者合作伙伴在内的团队的研讨会上进行处理。由此产生的工具提出了有关健康问题和健康信息的问题。研究参与者是从瑞典一家门诊诊所和患者组织招募的中风患者。开发和数据收集是并行进行的。对于概念化，最初的原型基于中风后检查表和研究。在焦点小组中探讨了需求和相关性，我们使用网络调查和个人访谈来探索感知的实用性、易用性和接受度。按照框架方法对数据进行主题分析。开发过程包括 22 名参与者（9 名女性），中位年龄为 59 岁（范围为 42-83），中风后中位年龄为 51 个月（范围为 4-228）。参与者对该工具的使用感到满意或非常满意，并推荐其在临床实践中使用。根据焦点小组数据 (n=12) 和访谈 (n=10) 构建了三个主题。首先，有价值的可获取信息表明需要信息来确认经历、促进响应并邀请参与他们的护理。信息的修改反过来又重新配置了他们的期望。其次，回答的实用性和复杂性证实了问题的相关性和可理解性。一些参与者认为答案选项有限制，并建议为自由文本提供额外的空间。第三，捕捉该工具的需求和价值强调了该工具识别健康问题的潜力以及鼓励进一步对话的重要性。由此产生的数字工具 Strokehälsa [Strokehealth] 1.0 版现已纳入国家健康平台。工具开发的参与式方法产生了研究小组认为有用的预访问数字工具。这里使用的整体开发过程集成了健康信息、经过验证的问题和数字功能，提供了一个可以适用于其他长期条件的示例。除了确定护理需求的潜力之外，该工具还提供了确认经验并支持回答工具中问题的信息。该工具可免费共享，以适应不同的情况。研究网236341； https://www.researchweb.org/is/vgr/project/236341
In patient care, demand is growing for digital health tools to enable remote services and enhance patient involvement. People with chronic conditions often have multiple health problems, and long-term follow-up is recommended to meet their needs and enable access to appropriate support. A digital tool for previsit preparation could enhance time efficiency and guide the conversation during the visit toward the patient’s priorities. This study aims to develop a digital previsit tool and explore potential end user’s perceptions, using a participatory approach with stroke as a case example. The digital tool was developed and prototyped according to service design principles, informed by qualitative participant data and feedback from an expert panel. All features were processed in workshops with a team that included a patient partner. The resulting tool presented questions about health problems and health information. Study participants were people with stroke recruited from an outpatient clinic and patient organizations in Sweden. Development and data collection were conducted in parallel. For conceptualization, the initial prototype was based on the Post-Stroke Checklist and research. Needs and relevance were explored in focus groups, and we used a web survey and individual interviews to explore perceived utility, ease of use, and acceptance. Data were thematically analyzed following the Framework Method. The development process included 22 participants (9 women) with a median age of 59 (range 42-83) years and a median of 51 (range 4-228) months since stroke. Participants were satisfied or very satisfied with using the tool and recommended its use in clinical practice. Three main themes were constructed based on focus group data (n=12) and interviews (n=10). First, valuable accessible information illuminated the need for information to confirm experiences, facilitate responses, and invite engagement in their care. Amendments to the information in turn reconfigured their expectations. Second, utility and complexity in answering confirmed that the questions were relevant and comprehensible. Some participants perceived the answer options as limiting and suggested additional space for free text. Third, capturing needs and value of the tool highlighted the tool’s potential to identify health problems and the importance of encouraging further dialog. The resulting digital tool, Strokehälsa [Strokehealth] version 1.0, is now incorporated into a national health platform. The participatory approach to tool development yielded a previsit digital tool that the study group perceived as useful. The holistic development process used here, which integrated health information, validated questions, and digital functionality, offers an example that could be applicable in the context of other long-term conditions. Beyond its potential to identify care needs, the tool offers information that confirms experiences and supports answering the questions in the tool. The tool is freely shared for adaptation in different contexts. researchweb 236341; https://www.researchweb.org/is/vgr/project/236341
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影响因子：
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作者：
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DOI：
10.1016/j.jstrokecerebrovasdis.2012.10.016
发表时间：
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影响因子：
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