Correlates of fertility issues in an Internet survey of cancer survivors
Correlates of fertility issues in an Internet survey of cancer survivors
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DOI：
10.3109/0167482x.2010.503910
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发表时间：
2010-09-01
影响因子：
3.1
通讯作者：
Boivin, Jacky
中科院分区：
文献类型：
--
作者：
Tschudin, Sibil;Bunting, Laura;Boivin, Jacky
目的。本研究的目的是(1)了解年轻癌症幸存者对癌症对生育的影响、生育困难如何影响他们的生活，以及他们是否会选择保留生育(FP)；(2)评估信息来源和他们的帮助。这项在线调查从8个癌症网站招募了患有癌症至少18年、影响生殖功能的女性。癌症与生育力调查(CFS)包含了经过验证的清单中的项目，以及用于评估癌症患者生育问题的项目。对自由文本数据进行计量分析(t检验、x(2)检验、方差分析)和主题分析。在80名参与调查的女性中，68.1%的人认为不孕不育的风险很高。咨询专业人员的平均人数为3.56人(SD=2.7)，但20%的女性没有与任何专业人员讨论过生育问题。配偶和肿瘤学家的加权平均帮助指数最高。对FP的积极态度强度明显大于消极态度。在癌症网站上搜索信息的女性中，讨论生育问题的需求很高。人们对保留生育能力的选择持积极态度，但出于对安全的担忧，实际使用可能会受到限制。
Purpose. The objectives of this study were (1) to determine what young cancer survivors know about the effect of their cancer on fertility, how fertility difficulties affected their lives and whether they would opt for fertility preservation (FP) and (2) to assess the sources of information and the helpfulness of them.Methods. Women of at least 18 years with cancer affecting reproductive function were recruited from eight cancer websites for this online survey. The Cancer and Fertility Survey (CFS) contained items from validated inventories and items to assess fertility issues in cancer patients. Quantitative analyses (t-tests, chi(2), analysis of variance) and thematic analysis of free text data were performed.Results. Of the 80 participating women, 68.1% rated the risk of infertility as high. The mean number of professionals consulted was 3.56 (SD = 2.7), but 20% of women had not discussed fertility with any professional. The weighted mean helpfulness index was the highest for spouses and oncologists. Strength of positive attitudes towards FP was significantly greater than that of negative attitudes.Conclusion. The need to discuss fertility is high among women searching for information on cancer websites. Options to preserve fertility were positively viewed but the actual use may be limited by concerns about safety.