The impact of Duchenne muscular dystrophy on families.
The impact of Duchenne muscular dystrophy on families.
复制标题
DOI：
10.1097/00006416-199109000-00009
复制
发表时间：
1991-09-01
期刊：
影响因子：
--
通讯作者：
Gagliardi, B A
中科院分区：
文献类型：
--
作者：
Gagliardi, B A
To understand the experiences of families having a child with Duchenne muscular dystrophy, the investigator studied three families for 10 weeks with a follow-up at 1 year. Six themes recurred in the common experiences in the families: the erosion of hope for normalcy; society's confirmation of the impossibility of normalcy; the dynamics of the family; a smaller world; letting go or hanging on; and things must change. This article illustrates these six themes, compares them to Roy's Adaptation Model, and discusses nursing interventions.
