Defining the content for a new quality of life questionnaire for students with low vision (The impact of vision impairment on children: IVI_C)
Defining the content for a new quality of life questionnaire for students with low vision (The impact of vision impairment on children: IVI_C)
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DOI：
10.1080/09286580701772029
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发表时间：
2008-03-01
影响因子：
1.8
通讯作者：
Keeffe, Jill
中科院分区：
文献类型：
--
作者：
Cochrane, Gillian;Lamoureux, Ecosse;Keeffe, Jill
目的：获得描述视力障碍对学龄儿童（8-18 岁）参与日常活动的影响的陈述，捕捉他们的意见，作为开发儿科视力相关生活质量工具的首要步骤。方法：在澳大利亚维多利亚州对低视力学生、家长和教师进行单独的焦点小组以及深入的个人访谈。焦点小组遵循主题指南，进行数字音频录制并逐字转录。声明被识别、编码并归入主要主题。结果：102 名参与者提供了超过 2600 条陈述（平均每份逐字记录有 146 条陈述），分为 5 个主题：学校/专家指导、社交互动、家庭、社区和视力障碍同伴互动。所确定的可能促进良好参与日常活动的领域是班主任知识和专家支持（40%）以及社交互动（39%），占陈述的 79%。学生的观点侧重于沟通技巧、方向和流动性，而专业讲师的重点是专家支持。各个焦点小组的主题重点各不相同，并强调在问卷设计中纳入所有利益相关者的观点的好处。结论：新问卷的多视角开发策略表明，整合不同利益相关者的观点至关重要。通过这样做，将有可能制定一份平衡的调查问卷。
Purpose: To obtain statements describing the impact of vision impairment on participation in every day activities of school-aged children (8-18 years) capturing their opinion, as the primary step in developing a pediatric vision-related quality of life instrument. Methods: Separate focus groups for students with low vision, parents and teachers plus in-depth individual interviews were conducted in Victoria, Australia. Focus groups followed a topic guide, were digitally audio recorded and transcribed verbatim. Statements were identified, coded and ascribed into major themes. Results: 102 participants provided just over 2600 statements (an average of 146 statements per verbatim transcript) which were classified into 5 themes: school/specialist instruction, social interaction, family, community and vision impairment peer interaction. The identified areas likely to facilitate good participation in every day activities, and accounted for 79% of the statements were class teacher knowledge and specialist support (40%) and social interaction (39%). The student perspective focused on communication skills and orientation and mobility whereas the specialist instructors' emphasis was on specialist support. Emphases across the themes varied between focus groups and highlight the benefit of including the perspectives of all stakeholders in questionnaire design. Conclusions: The multi-perspective development strategy for a new questionnaire has established that it is crucial to integrate different stakeholders' perspectives. By doing so, it will be possible to develop a balanced questionnaire.