Addressing Child Custody Concerns of Parents with Life-Limiting Illness.
Addressing Child Custody Concerns of Parents with Life-Limiting Illness.
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解决患有致命疾病的父母的儿童监护问题。
DOI：
10.1089/jpm.2019.0293
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发表时间：
2020
影响因子：
2.8
通讯作者：
Park,ElizaM
中科院分区：
文献类型：
--
作者：
Nelson,CourtneyA;Stanton,KateE;Bowers,SavannahM;Park,ElizaM
导言：监护问题是患有限制生命的疾病的单亲父母心理社会痛苦的一个主要来源。虽然儿童越来越多地生活在不同的家庭结构中，但目前的医疗保健系统并不是为了满足单亲或非传统家庭的独特需求。监护权问题得不到解决的患者在治疗期间和生命结束时可能会经历心理痛苦。缺乏清晰度和决议监护也可能导致额外的困难，为他们悲伤的children.Case描述：我们提出的情况下，一个36岁的女性转移性乳腺癌，谁是四个孩子的单身母亲。尽管对她孩子的健康非常关注，但患者没有完成法律的监护程序。她经历了巨大的痛苦，在她的生命结束时，由于一个悬而未决的监护plannes.Discussion：这种情况下表明，有必要解决监护和监护问题与重病患者的早期疾病轨迹。虽然临床医生不需要成为监护和监护的专家，但了解监护问题的影响以及解决这些问题的障碍可以大大改善患者的临终关怀，并更好地为未来的变化做好准备。
Introduction:Custody concerns are a major source of psychosocial distress among single parents with life-limiting illness. Although children are increasingly living in diverse household structures, the current health care system is not designed to meet the unique needs of single parents or nontraditional families. Patients with unaddressed custody concerns can experience psychological suffering during treatment and at the end of life. Lack of clarity and resolution regarding guardianship may also result in additional hardship for their grieving children.Case Description:We present the case of a 36-year-old-female with metastatic breast cancer, who was the single mother of four children. Despite significant concerns about her children's well-being, the patient did not complete legal guardianship processes. She experienced immense distress at the end of her life due to an unresolved custody plan.Discussion:This case demonstrates the need for addressing custody and guardianship concerns with seriously ill patients early in the illness trajectory. While clinicians need not become experts on custody and guardianship themselves, understanding the impact of custody concerns—and the barriers to their resolution—can substantially improve end-of-life care for patients and better equip surviving family for the changes that lie ahead.