Big Desire to Share Big Health Data: A Shift in Consumer Attitudes toward Personal Health Information
Big Desire to Share Big Health Data: A Shift in Consumer Attitudes toward Personal Health Information
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分享健康大数据的强烈愿望：消费者对个人健康信息态度的转变
DOI：
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发表时间：
2014
期刊：
影响因子：
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通讯作者：
M. Swan
中科院分区：
文献类型：
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作者：
K. Pickard;M. Swan
共享个人健康信息对于创建下一代医疗保健服务至关重要。为了实现预防性和个性化医疗，大量消费者必须汇集健康信息，创建可以分析健康和疾病趋势的数据集。纳入这些信息不仅将赋予消费者权力，而且还将使卫生系统能够改善患者护理。迄今为止，由于种种原因，消费者一直不愿分享个人健康信息，但态度正在转变。一项在线调查的结果表明，出于研究目的，人们愿意分享健康信息。在这些结果的基础上，作者提出了一个基于信任、动机、社区和知情同意来增加健康信息共享的框架。
Sharing personal health information is essential to create next generation healthcare services. To realize preventive and personalized medicine, large numbers of consumers must pool health information to create datasets that can be analyzed for wellness and disease trends. Incorporating this information will not only empower consumers, but also enable health systems to improve patient care. To date, consumers have been reluctant to share personal health information for a variety of reasons, but attitudes are shifting. Results from an online survey demonstrate a strong willingness to share health information for research purposes. Building on these results, the authors present a framework to increase health information sharing based on trust, motivation, community, and informed consent.