Research, engagement and public bioethics: promoting socially robust science
Research, engagement and public bioethics: promoting socially robust science
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DOI：
10.1136/jme.2010.041954
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发表时间：
2011-11-01
影响因子：
4.1
通讯作者：
Pickersgill, Martyn D.
中科院分区：
文献类型：
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作者：
Pickersgill, Martyn D.
今天的公民越来越希望了解生物医学知识，并准备参与其中。在这篇文章中，我希望重新构建这个“公众对科学的理解”项目，并重新强调公众对研究的理解：参与生物医学及其相关伦理的日常实验室实践，而不是具体的科学事实。这并不是基于非科学家是“无知的”，因此无法“适当地”使用或辩论科学的假设;相反，它是基于一个有说服力的观察，即一些人可能不熟悉特定模式的研究和伦理框架的某些特性，因此，当被邀请参加生物医学调查时，他们的自主权受到损害。在我自己的社会学研究的参与者的角度来看，神经科学的社会和伦理层面，我认为，公众的理解生物医学研究及其伦理应该在社区层面和研究的时刻本身，以提高自主性，促进社会更强大的科学。公共生物伦理学必须在这一努力中发挥关键作用，而且确实将以重要的方式为生物伦理学家、科学家和更广泛的公众之间对称参与的新空间的开辟做出贡献，从而为生物伦理事业的民主化做出贡献。
Citizens today are increasingly expected to be knowledgeable about and prepared to engage with biomedical knowledge. In this article, I wish to reframe this 'public understanding of science' project, and place fresh emphasis on public understandings of research: an engagement with the everyday laboratory practices of biomedicine and its associated ethics, rather than with specific scientific facts. This is not based on an assumption that non-scientists are 'ignorant' and are thus unable to 'appropriately' use or debate science; rather, it is underpinned by an empirically-grounded observation that some individuals may be unfamiliar with certain specificities of particular modes of research and ethical frameworks, and, as a consequence, have their autonomy compromised when invited to participate in biomedical investigations. Drawing on the perspectives of participants in my own sociological research on the social and ethical dimensions of neuroscience, I argue that public understanding of biomedical research and its ethics should be developed both at the community level and within the research moment itself in order to enhance autonomy and promote more socially robust science. Public bioethics will have to play a key role in such an endeavour, and indeed will contribute in important ways to the opening up of new spaces of symmetrical engagement between bioethicists, scientists and wider publics-and hence to the democratisation of the bioethical enterprise.