Experiences of mothers of infants with congenital heart disease before, during, and after complex cardiac surgery
Experiences of mothers of infants with congenital heart disease before, during, and after complex cardiac surgery
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DOI：
10.1016/j.hrtlng.2013.08.009
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发表时间：
2013-11-01
期刊：
影响因子：
2.8
通讯作者：
Loan, Lori A.
中科院分区：
文献类型：
--
作者：
Harvey, Kayla A.;Kovalesky, Andrea;Loan, Lori A.
目的：探讨接受复杂心脏手术的婴儿母亲的经历，以建立以家庭为中心的循证干预措施。背景：先天性心脏病是美国最常见的出生缺陷，在全世界都很常见。方法：八位母亲通过日记回忆她们婴儿手术前、手术期间和手术后几天的经历，并向其他母亲分享建议。采用Colaizzi 的现象学方法进行数据分析。通过电子邮件对来自支持小组的另外七位母亲进行了验证调查。结果：确定并验证了六个主题：感觉强烈波动的情绪；畅游医学世界；应对未知；面对婴儿死亡的可能性，寻找意义和精神联系，以及“母爱贯穿一切”的总主题。结论：通过更清楚地了解母亲所描述的经历，医疗保健提供者可以深入了解如何更好地支持接受心脏手术的婴儿的母亲。 (C) 2013 Elsevier Inc. 保留所有权利。
Objective: Experiences of mothers of infants undergoing complex heart surgery were explored to build evidence-based family-centered interventions.Background: Congenital heart disease is the most frequent birth defect in the United States and is common worldwide.Methods: Eight mothers recalled through journal entries their experiences of the days before, during, and after their infant's surgery and shared advice for other mothers. Colaizzi's phenomenological method was utilized for data analysis. A validation survey of seven additional mothers from a support group occurred via email.Results: Six themes were identified and validated: Feeling Intense Fluctuating Emotion; Navigating the Medical World; Dealing with the Unknown; Facing the Possibility of My Baby Dying, Finding Meaning and Spiritual Connection, and the umbrella theme of Mothering Through It All.Conclusions: Through a clearer understanding of experiences as described by mothers, health-care providers may gain insight as to how to better support mothers of infants undergoing heart surgery. (C) 2013 Elsevier Inc. All rights reserved.