VISIT-TS: A multimedia tool for population studies on tic disorders.

VISIT-TS: A multimedia tool for population studies on tic disorders.
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DOI:
10.12688/f1000research.7196.2
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发表时间:
2016
期刊:
影响因子:
--
通讯作者:
Black KJ
Black KJ
中科院分区:
其他
文献类型:
--
作者:
Vachon MJ;Striley CW;Gordon MR;Schroeder ML;Bihun EC;Koller JM;Black KJ

文献摘要

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Population-based assessment of Tourette syndrome (TS) and other tic disorders produces a paradox. On one hand, ideally diagnosis of tic disorders requires expert observation. In fact, diagnostic criteria for TS explicitly require expert assessment of tics for a definite diagnosis. On the other hand, large-scale population surveys with expert assessment of every subject are impracticable. True, several published studies have successfully used expert assessment to find tic prevalence in a representative population (e.g. all students in a school district). However, extending these studies to larger populations is daunting. We created a multimedia tool to demonstrate tics to a lay audience, discuss their defining and common attributes, and address features that differentiate tics from other movements and vocalizations. A first version was modified to improve clarity and to include a more diverse group in terms of age and ethnicity. The result is a tool intended for epidemiological research. It may also provide additional benefits, such as more representative minority recruitment for other TS studies and increased community awareness of TS.