Use of the SF-36 and other health-related quality of life measures to assess persons with disabilities
Use of the SF-36 and other health-related quality of life measures to assess persons with disabilities
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DOI：
10.1053/apmr.2002.36837
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发表时间：
2002-12-01
影响因子：
4.3
通讯作者：
Marshall, G
中科院分区：
文献类型：
--
作者：
Hays, RD;Hahn, H;Marshall, G
本文评估现有的方法来评估残疾人的健康相关的生活质量（HRQOL）的适当性。我们比较了HRQOL的概念模型，从医疗结果研究与世界卫生组织的国际功能，残疾和健康分类。此外，我们还研究了对这两个模型所产生的疾病“负担”的态度。我们注意到，健康领域的价值观或重要性如何随着身体健康的波动而变化。此外，我们总结了有利于制定针对残疾人的措施的论点。最后，我们讨论了一些方法学问题，在评估身体功能，归因于健康与残疾，和管理模式。我们的结论是，用户的“标准”HRQOL措施需要知道他们的局限性评估残疾人。
This article evaluates the appropriateness of existing approaches to the assessment of health-related quality of life (HRQOL) for persons with disabilities. We compare the conceptual model of HRQOL from the Medical Outcomes Study with the World Health Organization's International Classification of Functioning, Disability and Health. In addition, we examine the attitudes toward disease "burden" that arise from these 2 models. We note how values or the importance attached to domains of health can change with fluctuations in physical health. Further, we summarize arguments in favor of developing targeted measures of persons with disabilities. Finally, we discuss some methodologic issues in assessing physical functioning, attributions to health versus disability, and mode of administration. We conclude that users of "standard" HRQOL measures need to be aware of their limitations for assessing persons with disabilities.