The Impact of Episodes of Lucidity on People Living With Dementia and Their Caregivers: A Case Report.
The Impact of Episodes of Lucidity on People Living With Dementia and Their Caregivers: A Case Report.
复制标题
清醒状态对痴呆症患者及其照顾者的影响：病例报告。
DOI：
10.1097/wad.0000000000000553
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发表时间：
2023
影响因子：
2.1
通讯作者：
Gilmore-Bykovskyi,Andrea
中科院分区：
文献类型：
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作者：
Benson,Clark;Fehland,Jess;Botsch,Meghan;Block,Laura;Gilmore-Bykovskyi,Andrea
患有痴呆症（PLWD）的人可能会经历清醒期（ELs），定义为假定已经失去的能力的突然恢复，并表现为有意义的沟通和联系。对晚期疾病阶段EL的早期研究表明，这些主要是阳性事件。本病例报告来自一项描述性定性研究的1例离群病例，该研究对PLWD的护理人员与EL的经历进行了描述。被认为是EL的自我报告事件伴随着意想不到的自我意识，导致消极的情绪反应和失落感。本病例报告有助于深入了解目前的理解EL作为专门相关的晚期痴呆症，类似的事件可能存在于早期疾病阶段，并可能与PLWD之间的负面情绪体验。未来的研究需要考虑伦理学的影响，周围的EL和支持照顾者在预期和响应EL。
People living with dementia (PLWD) may experience the episodes of lucidity (ELs), defined as a sudden return of abilities presumed to have been lost and presenting as meaningful communication and connection. Early research on ELs in advanced disease stages suggests these are predominantly positive events. This case report draws from 1 outlier case from a descriptive qualitative study on caregivers of PLWDs’ experiences with ELs. The caregiver-reported events perceived as an EL being accompanied with unexpected self-awareness, leading to a negative emotional reaction and feelings of loss. This case report contributes insights to the current understandings of ELs as exclusively relevant in advanced stages of dementia, as similar events may present in earlier disease stages, and may be associated with the negative emotional experiences among PLWD. Future research is needed to consider the ethical implications surrounding ELs and to support the caregivers in anticipating and responding to ELs.